I am a girl of 35 years, good health, normal weight etc.
I would apreciate your opinion to my problems.
November 2004 muscle twitching starts in calves. 1 month after a viral infection.
Spreads over the next months to thighs, abdomen, genital area, and arms.
July 2005 , I wake up one morning with as strange vibrating, pins and needles feeling in my genital area.
The feeling persists, comes and goes durign the day but is there every day.
August 2005, the "vibrations" / pins and needles spread to legs, but are still worse en gentital area.
August 2005, MRI of head and lumbar spine, plus neuro examination is normal.B12, Thyroid function, calcium levels etc is normal.
September to december 2005, cold feelings in the legs comes and goes, cold feeling in scalp comes ang goes, a feeling of heavines in left side of face happens twice, lasts for a few minutes.
Twitches under the feet starts.
The worse thing is still the pins and needles feeling everyday in my groin, genetial area!
I am exercising without problems.
I am really confused, I am gettign scared and my thoughts about this is keeping me awake at night.
Could this be MS?
Could this be myastenia Gravis?
Waht I fear the most is the paraneoplastic syndrome, what are your thoughts?
Is this some kind of neuropathy?
I am very interested in knowing if this could be a bening thing, We were planning to have kids, but I do not know what to do now. I don`t want kids if I have a malignant condition.
I cannot give you a clinical diagnosis over the internet unfortunately so you should see your doctor about these issues also
Hopefully I can give you a few pointers though
First of all, the first thing to exlucde with the perineal symptoms is an STD and you should have a swab for chlamydia etc
After a viral infection, there can be a triggerred immune response to the nerves and one can see muscle or nerve irritation, manifested as fasiculations. It sounds like these resolved so therefore are more likely related to a postviral syndrome and not to your second set of symptoms.
1) there seems to be multple sensory symptoms without any objective evidence of a neuro system probelm by exam, MRI. While sensory symptoms can be present with MS, they are usually not the only manifestation and the MRI is usually abnormal in the brain or upper spinal cord (did you have a cervical spine MRI?)
2) Myesthenia gravis is a problem with the interface of the nerve and the muscle and manifests with muscle weakness, not sensory symptoms.
3) There is an entitiy of a pure sensory paraneoplastric sydnrome, most classically isolated chin numbness which is quite specific for an associated tumor. There can also be a more widepread sensory neuropathy, sometimes presenting before symptoms of a tumor. However, this is very rare - there are some antibody tests available but they are expensive and should be ordered by your physician if he suspects this knowing your full story.
4) there is a generic screen for a sensory neuropathy that your neurologist can do that includes for instance diabetes, sjogrens syndrome, HIV, monocloncal antibodies etc. This is a good place to start. Tests like EMG etc are unlikely to be helpful in the absence of sensory symptoms only. One useful screenign test might be somatosensory evoked potentials of the median and tibial nerve to see if there is anything effecting the sensory pathways from the peripheral nerves through to the spinal cord. It is realtively inexpensive and easy to do.
Up to 30-40% of sensory neuropathies remain undiagnosed, so I would suggest getting on with your life as normally as you can, the chances that you have a malignant condition are quite low.
Have you checked what medications you took for treating your infections, to rule out that you are not suffering a long term adverse reaction?
Viral infections do not require antibiotics, but sometimes they are prescribed. If you took any antibiotic of the quinolone family like cipro, levaquin, avelox, floxin, or the like, you should check first of all whether you are having a delayed, long term sensitivity, so common.
Try to make a list of all the drugs you took up to one year prior to your symptoms, and since then, like the abovementioned antibiotics, inmunosuppressors, strong medications for special health conditions, antirheumatics. Also consider your exposures to chemicals at work or during your leisure activities.
I also have very similar symtoms as you guys do. I am 42 yo female. In 1992 had a weird rash followed by eye pain and floaters. About 6 months later developed all over twitches,fevers, elevated liver enzymes, weird rashes, weakness , numbness, tingling, more eye floaters, strange visual disturbances, left leg dragging and so on.....I had the whole gamut of tests.. MRI brain, spinal tap,EMG. all normal. The neuro I saw said I had a central nervous system disorder but that he had no idea what it was. Anyway, it went away after a few YEARS. Only to return again this year. I have twitching, weakness of arms and legs, numbness, tingling, face numbness, more eye floaters, weird rash again etc... I have had over the past 8 months..2 MRI's of the brain, 2 MRI's of the cervical spine, thoracic, lumbar MRI's, EMG, evoked potentials were done today, lab work. All results have come back normal, except evoked potentials as I don't have the results yet. I know what you are going through, no one can figure this out. My one suspicion is lyme since I had the bullseye rash in 1992 prior to my symptoms. I'm going to see a specialist in Feb. It's just so scary. I feel like my life is over.
Hi there: I noticed your post and could not help but wondering if your viral infection may have triggered these unexplained neurological symptoms. I also had a viral infection and rash in the fall of 2001 and shortly after experienced internal vibrations, pins and needles pain, cramping, footdrop and intense pain in my left leg and foot. Sorry, to say these symptoms have worsened and my quality of life is impaired since I have problems, walking and with balance and coordination, besides weakness. Like most people experiencing neuro symptoms, mine are also worse in the evening and night. At first my nervous system was really out of whack. I couldn't whistle or wink but that ability has returned. But my reflexes are still hyperactive and I am still hypersensitive to stimuli. I would vibrate internally and any electrical noises or humming would seem to set it off. I would sit and watch my leg tremor and couldn't do a thing about it. My tongue and lips tingle and I get electrical like shocks in my foot, toes and fingers. It doesn't hurt to touch my hands or feet, as the pain originates from the inside through the nerve endings. I still don't have a diagnosis and everything organic has been ruled out. MRI's, EMG' and an EEG have all returned normal as well as my B12 levels, although I get monthly injections and take oral B12 meds daily. My family history has four of my direct relatives with Pernicious Anemia and MS does run in my family, but not in my immediate family. I do have a history of allergies and my ANA was elevated but they can't figure out why. I also had Bell's Palsy, chicken pox as an infant and unexplained neurolgical pains for many years. I am now retired in my late fifties and healthy in all other aspects. So, I am wondering if the virus and rash I had, somehow contributed to these symptoms and how many more people out there may be in the same condition. I would recommend that you keep a journal of your symptoms and start investigating your family medical history to see if any others may have similar problems. My mother died of a brain hemmorhage at age 48, so I was very concerned that I had taken a stroke but that was ruled out. However, people ask me if I did take a stroke due to my problems with walking and my speech. Somedays it is normal and other days I cannot seem to get the words out or stutter. Go figure!!! I knew what it was like to be normal for 55 years. I also do not have depression or suffer from anxiety as that has all been ruled out. The only prescribed meds I take are Gabapentin, for the nerve pain and Detrol, for my over active bladder. They first suspected I had MS or a problem with my upper motor neurons misfiring. It may end up that I will develop MS but they won't prescribe anything to halt the progression of my symptoms until I receive a diagnosis. How many other people out there are also "lost in limbo" with no diagnosis or treatment, yet they experience the deterioration in their condition and abilities. I have left sided weakness with no explantion and I am sure if doctors had to walk in their patient's shoes for a day or so, they may be more understanding of what they undergo each day. Good luck and I hope that your symptoms are only temporary. If you find any similar background material in our cases, please get in contact with me.
I have had the same problems (35 y/o male) - has anyone rec'd any advice from any of their DR's?
About 1 year ago I had urinary problems (first I went too much then I couldn't go at all)and left penile, buttock and scotal pain. Doc checked for STD's etc did all the blood and urine work and found nothing. Sent me to a urologist who thought maybe Prostate - found nothing upon exam, urinalysis and CT scan of the bladder. Both GP and Urologist couldn't explain so I got the old Dx with Hydrocele and epidydimitis. The symptoms subsided around March 05.
I stopped smoking about 2 months ago (after 20 years) and experienced numbness in my tongue and mouth - thought maybe it was normal for stopping smoking. Then the numbness appeared bilaterally in both hands and feet 1 week later. i currently suffer from bilateral numbness in the hands, feet, scrotal, penile and rectal areas (saddle), facial, cranial, lips and tongue area. The then onset of the bladder problems came on again like before.
I have had MRI of the lumbar, cervical spine and brain - no lesions have been found - they obviously think that I could have MS (no one in my family has ever been Dx with MS) so I am set up for the evoked potentials and ultimately the spinal tap. I am just wondering
1) if maybe a viral infection could have brought this on
2) Could the neuro be related to smoke cessation and unrelated to the urology symtpoms
3) what other possible expalnation could there be so I can research it myself.
I was tested for Lyme and as far as my rash goes, the doctor prescribed a cream, flouoderm 0.025%. This was about three weeks after I had the rash and a slight elevated fever and flu like symptoms. I attributed my leg cramps to menopause, until I just couldn't stand the pain anymore and went for tests. They x-Rayed my foot and there was no sign of any injury and I had a back X-Ray as well. The last MRI showed slight spinal stenosis or degeneration, but that is normal for people my age. Today the cramping was at the back of my leg and above my knee. During the last week, the pain is migrating more up my leg and at the back, and that has never happened before. I THINK our problems may have stemmed from some type of viral infection, which triggured an overactive immune system to manifest itself in these WEIRD neuro symptoms. But try to rule out any other incidents or investigate your own medical history. I had episodes with that same leg going back to my 20's, but always thought I had sprained it. So, maybe it was a pre-existing condition that was dormant and now that I am nearing my "Golden Years" with a weakened immune system, it has become active again. That is only a guess on my part, but think back to your medical history and any unexplained pain, weakness, mobility problems etc. Yes, I also forgot to mention that I had three convulsions as a toddler from a high temperature. I also have many food allergies and am very sensitive to fumes, inhalants, etc. Sorry, this post is long, but I am trying to come up with some common ground here, where we may all have similar experiences. Check with your parents, aunts and uncles etc. as there may he a heriditary component to this. I had an aunt with Pernicious Anemia and as long as I can remember, she limped and had to have special shoes made. Also, all of my aunts had multiple strokes, although they lived to be in their 80's. I hope that this thread continues and that we are able to help somebody out there.
I had almost identical symptoms except the my jawline was affected but not my genital area. My symptoms started 11 months ago after a virus. The symptoms as well as my anxiety peaked in July and they have been getting better since then but very, very slowly. I too had all normal tests and neuro exams(but I was not tested for paraneoplastic disorders since this is expensive and was not really indicated). The symptoms were just something I felt, but they never caused me any disability or loss of reflexes. I kept a journal of everything I did and ate and noticed the symptoms were made worse when I consumed sugar in higher quantities and did not eat well, and the symptoms were worse in the evening. I cut most refined sugar from my diet and started maore balanced meals. Neurologist believes this to be post viral and says it generally takes 12 to 18 months to heal, sometimes with residual symptoms that do not resolve. I no longer have symptoms in my face, upper back, arms or thighs with only very mild symptoms in my calves.
Keeping a journal and controlling the anxiety really helped me throughout this process. I would also suggest the same to you. If this is what I experienced, it will take a long time to resolve with flares ups on occasion but you will slowly get better. Don't get discouraged and best of luck to you.
Hello, I am a 34 year old female in pretty good health. I have been experiencing burning sensation throughout my body. At times, I also feel numbness and tingling. This all started about 2 weeks ago when my right thumb and pointer finger felt like I burned them. In addition, I have sinus problems and both ears feel clogged. I have had blood work done, CAT of the head and chest xray. These all came back normal. I have been to my Neurolist who has scheduled me for a nerve test. He thinks I have a pinched nerve somewhere. Can a pinched nerve cause all of these sensations?
Can anyone help me? I dont know if any or all of this is related. One month ago, i had a very bad migraine. It lasted one week, terrible pressure along with the pain. I dont know if its related, but after the migraine stopped, the next day the skin on my right thigh started to hurt, very sensitive, even clothes hurt to wear. Then it travelled up to my hip area on one side then to the waist area. Then the sore skin travelled over to the other side, and down my left leg. Right down to the foot. This process has lasted a month. Then just when i thought it was gone, I suddenly started to have tingling pins and needles sensation up my legs and occasionally in my arms and even a little into the groin area. Please help, i live overseas right now, and need someone to tell me if this could be something serious! If anyone can help me please write! Or if anyone has had the same experience, and found out if its serious? thanks
Hi everyone, just like you all I'm having these bizarre symptoms that my doctor is writing of as STRESS "it's in your head". Here's my story. I'm 32 and seemed to be healthy up until: in July, I had sexual relations an old beau.... I know.... Well, a month later I come down with these fluish like symptoms and really itchy skin all over my body. I also had what appeared to be ulcerations on my hoo hoo (between the 2). Well, I went to the doctor and had them cultured for herpes, NOPE came out negative(I know the test is 50% false negative), I also had a papsmear and things came back normal except I did have bacterial vaginosis and went on antibiotics for it. I explained to my doctor how I felt - tingly, burning sensations all over my entire body, even my eyeballs!! I was itchy for 3 weeks straight - it was aweful and uncontrollable, would keep me up for hours at night, even my ears would get so itchy they'd burn. I went on the internet and thought geez maybe i have hep C or something, went back to the doctors for more tests - nope, not that either. Lyme disease - no! MS? Lupus? What is wrong with me??? I went back to the doctor, even though I have not had any more ulcers per say, however,I have been itchy in my pubic bone area with little pink bumps hardly noticable - some turned out to be ingrown hairs and most look like they are on a hair follicle, I also get this burning sensation there the most. I don't know - went back to the doctors again this time to have a herpes blood test, because I am convinced - NOT HERPES!!! She told me I have no sign of herpes and that she believes this all stress related. I don't know maybe these tests just don't work?? Do they? I am going nuts - I had that first breakout thing - or whatever - that's what I'll call it. Never have I had that type of ulcer thingy again - Also, after 3 months of the insanity, it went away for about a month and now is back. My hips were killing me for weeks (the first time around - not now), my skin itchy for weeks, pringly tingly burning sensations all over my body, also one week my arms even killed beyond belief. What is wrong with me!!!! I'm going to the gyno tomorrow - maybe to get another herpes test... that's all I can think it would be - what else would it be? Oh, along with this I also get sores in my mouth, I have 3 right now! Please help me!!!!! Should I see a neurologist?
I was diagnosed positive for herpes (never had an outbreak). After that diagnosis I went into "shock" and...
My leg's have been twitching, poping, tingleing, going numb and have had a feeling of pins and needles for the past few months. It is driving me crazy! I went to the neurologist, he zapped my legs and said my nerves were fine and he said I probably had restless leg syndrome (RLS) and put me on Requip. It does not seem to work all that well. The twitches come and go all day. I feel it in the thighs, behind the knees, calves, feet. I even noticed that I have two large lumps or a giant dent in my left thigh when muscle is fully flexed. Worried, but the Doctors keep telling me not to be. They say it is just my anxiety causing all of this. I would not have the anxiety it the twiching would just go away already! What is up with the thigh, I can see the damn muscle changing, how can this be normal and due to stress and anxiety? They say work out and it will go away, I am working out every day and the legs just seem to get worse! Can anyone relate to what I am going trough here???
Doctors seem to think I am a hypocondriac, I think it's for real. I just want to get better!!!
I am newley diabetic (well into my 3rd month now) but I have all the symptons you all discribe, my legs and arms are itchy, sore, pins and needles, tingley, burn hot etc, and i have been like this for almost 3 weeks now. my legs are also becoming increasinly restless, and exercise isnt helping. I have lost alot of weight, am taking metformin which dont normally have these sort of side effects, but i am also on anti depressants and sleeping tablets. I have looked up neupathy, but thats mainly in the feet, mine seems to be anywhere but my feet :( Any ideas, I am scared of what the doc will say, but its driving me mad, I am getting grumpy etc
I was lurking around this thread because I have the same symptoms: itchy rash on arms, back, and legs; tingly numbish feeling in hands, feet, face; flu-like ache;pain in hips, knees, shoulders, neck; gerd. This all started the day after I had three fillings placed. I never put the two together because the fillings are composite. A couple of posts ago someone mentioned dycal and other dental materials, that made me think ..HMMMMM. I have a mouth full of composite resin fillings. I had all of my amalgams removed 17 years ago because of the toxic mercury, but maybe I just traded one poison for another. The lesser of the two evils. Did anyone else have dental work before symptoms started?
I took Suprax about 5 years ago when I had a flu. I had my spleen removed after a car accident in 97 and the doc was thinking I might have had Pneumonia. I avoid them and all pharmacuticals like the plague.
This afternoon I had several episodes of pins and needle feeling in my tongue. No pain any where but its concerning me since its not a normal feeling.
I use to get the same feeling on one side of my tongue amd face into my eye with migraines but this is not the case. It was only on ,y tongue went away after a few minutes and came back again. It now has happen 3 times. Around noon (5 hrs ago) I took an injection of 1000mcg of B12. I have been taking this for years as I have an iron deficent anemia and its perscribed.
Can anyone shed any light on whether this is something tp be concerned about?
One other thing, I am under the impression that nervous function is affected greatly by hydration, and I know I've not been drinking as much water as I usually do the last few weeks, so I'm definitely going to be making an effort to drink more. Some things are actually very simple and I hope that this is one of them!
I've had diabetes for thirteen years (I'm 26 now), and recently - within the last month or two - I have had spontaneous pins and needles in my limbs, mostly when I'm sleeping (or trying to). I know it can have to do with diabetic complications. I've got good B12 levels, and I've been taking fish oil supplements for a few months, which is apparantly quite good for your nervous system. But essentially, I don't really know what's going on with me either.
I know an acupuncturist that I used to see for some knee injuries, and she managed to fix those problems very promptly and they haven't returned. I'm under the impression that nervous disorders can respond very well to acupuncture.
I also practice Tai Chi, and I've seen many arthritic people benefit by reduced pain and increased mobility from their Tai Chi and Qigong practice. I think that it can help the central nervous system, too. I'm not a doctor, and it's always good to consult doctors, and these therapies I have found very helpful in my life and health overall. Acupuncture can have rapid results, while Tai Chi or Qigong training usually takes longer. It's unrealistic to expect changes with anything less than three months regular practice.
Having said all that, I am aware that I practice these arts and still have symptoms of nervous disfunction. I also have diabetes, though, so there are a few different health-related things going on, and I believe my diabetes is under much better control for my practice than it would be if I didn't practice at all. And essentially, I believe that these are very beneficial arts, so if you can find a teacher, I'd recommend you give it a go. At any rate there's nothing to lose - I've never heard of Tai Chi having side effects. And keep in constant consultation with any health-care professional you can find who can help more!
My problem sounds somewhat like everybody else's.
It started with muscle tenderness (which I still have a little).
The muscles still had their strength and did not not impeade
my daily life. But if I held an arm or a leg etc in a position for a minute or so it would ache a bit. If I stood on a rung of a fence etc. in the middle of my foot it would be somewhat tender. I had this for a couple of weeks.
Then the skin tingling started and it would roam over most of my
body but not my genitals. It is not painful just nagging. It stopped for a couple of days then began again. It does effect the area around my eyes and has made one eyelid droup a bit.
I have just had my physical and everything is OKAY. My appetite is normal as well as other bodily functions. My doctor is sending me to a neurologist in a couple of weeks.
This happened to me years ago but with panic attacks. I was diagnosed with depression and have been on medication ever since. The symptoms disapeared but every once in a while they return. When they do return it was one symptom or the other, not all together and quite mild and short.
The event I have now has been around for a few weeks so
I am quite concerned. At first I thought it was the eratic barametric pressure, because of the crazy winter we've been having. Then I thought it may have been the vitamin suppliments interacting with the medication, but have been told no.
I read everyon'e complaints symptom by symptom and they all mirrior what I am experiencing. I was diagnosed inconclusively with Myastenia Gravis in 1990. I had undergone disc repair surgery and everything went well. That is until the next day Post Surgery. I ate breakfast and took a nap, but when lunch came I became acutley aware that I could not swallow at all. When I complained the doc's said that it would go away, indicating that it was probably from having the tube down my throat during surgery. I was released from the hospital the next day still unable to swallow, however, being encouraged that this would clear up on its own. I was home for three days still unable to swallow, I had been spitting out my secretions because I could not swallow them. I called my primary doctor and told him was I was experiencing and he told me to go to the Emergency Room immediatley. I went back to the hospital and was admitted. I was given the best Nurology team in Washington, DC. I was seen by the King himself Dr. John Kelly, George Washington University Hospital I mean, when I mention this doctor's name to other Nurologist they all seem to know him or know of him. He ran all kinds of tests on me, MRI, MRA, EMG, swalling and speech tests. Finally, he performed a Tensilon test that he said improved my strength somewhat, but it did not return my swallowing.
After being in the hospital for nearly three weeks I was told to go home and I was given Mestinon and Phenigren. I had to take these meds every four hours without fail. I was told that I would have to continue this regimen for the rest of my life. The meds did nothing in terms of making my swallowing better. What they did do was shut down my kidneys and my liver. I was readmitted to the hospital this time though my family was called and told to come and say their good-bye's to me. I was placed in intensive care. The second day after I should have been dead according to the test, my kidney's began to function, by liver functions also return. I was released from intensive care and back to mainstream hospital. I was realed after a week. Dr. Kelly came to see me and indicated that he had written orders to place me on dialysis and that he also had placed on the list for a kidney transplant, all before my liver shut down. Then, he thought that just it for me.
I was released from the hosptial this time I opted not to take meds and I have not taken any since. I have the ichy arms and legs and pins and needles feelings in my finger tips and my feet. I am not diabetic. At night routinely, my legs and feet hurt so badly I can hardly sleep. I have tingling in my mouth and my eyes droop. I am challenged with my swallowing daily. What I have found that has kept me in adition to God is sleep. I really believe this, when I feeling really weak, I go to sleep and my strength is renewed enough to continue to function. I don't know that I will ever be the same as I was before this all started, but I will continue until someone somewhere finds the answer for me.
Hi, I am 34 yrs old. From the age of 31-33 I had the same exatc symptoms. The worst part for me was that they came very sudden. Prior to these symptoms I was always very healthy. After many, many tests and hospitals and doctors and two years later still no diagnosis. My primary Doctor suggested that it may be Anxiety or Panic Disorder of course I said no way my life is perfect. Guest what I guess he was right after my divorse a year ago I have been relaxed and symptom free. I'm not trying to be funny but its something to think about. Maybe you are under a lot of stress and your body does know how to respond...
I HAVE HAD NUMBNESS, TINGLING, WEAKNESS TO RIGHT LEG AND FOOT X2 MOS. THE TINGLING HAS NOW MOVED UP TO WAIST AREA. I HAVE HAD EMG, MRI OF CERVICAL AND LUMBAR SPINE WITH SOME CERVICAL STENOSIS ON CERVICAL MRI. NO ARM OR HAND SYMPTOMS SO FAR. FAMILY DR. IS RECOMMENDING LYRICA, A NEW DRUG SIMILAR TO NEURONTIN. ONE YEAR AGO I HAD EPIDURAL FOR KIDNEY SURGERY AND IT LEFT MY RIGHT LEG VERY NUMB FOR SEVERAL DAYS. HAS ANYONE HAD SIMILAR SYMPTOMS OR ANY ANSWERS TO THIS SUDDEN ONSET NUMBNESS AND MUSCLE WEAKNESS?
I have solved my delema. I had a panic attack awhile ago and the tingling started to subside. I have been on anti-depressants
for years. Lucky I had a appointment with my shrink the next day
and I told him about the event. I said I have had the tingling and muscle tenderness for weeks, then the panic attack, then it subsided. I concluded it may have been stress even though I didn't feel stressed and the panic attack was a valve of some sort and it blew. He agreed and upped my medication which should take a week or so. Regardless of the medication I felt a whole lot better after the attack. I think stress causes a lot of symptoms we may not understand. Check some of the stress and anxiety web sites and compare your symptoms.
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