I am a 38 year old female living in the Pacific Northwest. In December 2007, I woke up with an eruption of shingles on my right side - from my rib cage to the middle of my back. I immediately went to the Dr. and was given a dose of Acyclovir and the condition resolved. Beginnning in February 2008 (after two weeks of stress), I had some lightheaded episodes and gradually became aware of a frequent urination problem. During the course of the next 6 weeks, I had an ultrasound and saw a kidney specialist to determine the cause of my urination problems. All tests were normal. In April 2008, my symptoms progressed to a full blown neurological nightmare. I had problems with dizziness, speaking, walking and writing. I was hospitalized for a week. I had an MRI with and w/o contrast and an MRA of my head. With the exception of a slightly enlarged pituitary, they were fine. All blood work was normal. A battery of tests for pituitary hormones was conducted and were normal. A spinal tap revealed normal pressure, an elevated protein of 47 and no olligoclonal bands.
The strangest part is that while in the hospital, I discovered that if the bed were at approximately a 30 degree angle, the neurological symptoms would resolve completely. If however, I moved out of this position, even slightly, all of the symptoms would immediately return. After a few days of experimenting with this, I discovered it had to do with my spinal alignment. I felt like a circus trick. One moment completely incapacitated and the next able to speak clearly as long as I didn't move. After much testing, the physicians scratched their heads and told me I had conversion reaction from the stress of my father dying 7 years ago. My father had lung cancer that metastisized to his brain. He had problems with speech in the last month of his life. I loved my father very much, but a group of doctors that have known me for a week telling me that my illness is psychosomatic from a seven year stressor is a stretch.
Here it is 3 months later, and my symptoms are persisting in much the same manner. I have continued to seek medical treatment and have resorted to a holistic chiropractor and a physician that specializes in diagnosing strange things. My symptoms seem to round robin. In the mornings, I have a buzzing feeling in my head when I wake up. I am not sleeping well - generally 3 hours at a stretch. I am exhausted. Some days I can't speak - I stutter and my tongue feels too large for my mouth. Some days, I have to pee 30 times. Consistently, I have had lightheadedness and headaches behind my left eye - to the point that I have had to stop operating a vehicle. Since I was hospitalized, I have had a GTT that was normal and a Field Vision Test that was normal. Additional blood work for heavy metals - all negative. The only deficiency so far has been for Vitamin D and a high IgG for Zoster. My Doctor assures me I don't have MS, diabetes or any auto immune disease. My Doctor thinks that the shingles did neurological damage to my spine and that it will take a while to resolve.
This past weekend, I was not able to speak on Friday and Saturday. On Saturday evening, I tried to duplicate my hospital stay and put a small ball under the left side of my neck. Within 30 seconds, my head cleared and I was able to speak fluently. I can find no information on the internet of anyone with a positional neurological problems. I feel as though I am going crazy. Sometimes shifting my weight from right to left foot will affect my vision and speech. Has anyone ever experienced anything like this? I am having a cervical MRI on Monday.... hopefully this will reveal something...
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