I have recently been disagnosed wth Post anoxic cerebral myoclonus following a cardiac arrest (after severe asthma attack). I am struggling to find any specialist doctors in the UK who know much abt this condition or any reference/reserach material. Plse can you advise if you are aware of any specialists who maybe able to shed some more light on what seems to be a pretty rare condition. I am prepared to travel wherever it takes to get some further answers / help with treatment and possible recovery.
Do you still check this site? I hope you have found help. My husband has lance Adams syndrome. He had a cardiac arrest following a seizure and was resuscitated. Now he has action myoclonus, being treated by neurologist in Boston. Takes depakote and has much improvement. No more falls! Hope you find this!
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