Post anoxic cerebral myoclonus

HI
I have recently been disagnosed wth Post anoxic cerebral myoclonus following a cardiac arrest (after severe asthma attack). I am struggling to find any specialist doctors in the UK who know much abt this condition or any reference/reserach material. Plse can you advise if you are aware of any specialists who maybe able to shed some more light on what seems to be a pretty rare condition. I am prepared to travel wherever it takes to get some further answers / help with treatment and possible recovery.

Many thanks
JMW, UK

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2 Comments Post a Comment

Tammi5252

Jul 25, 2012

Do you still check this site? I hope you have found help. My husband has lance Adams syndrome. He had a cardiac arrest following a seizure and was resuscitated. Now he has action myoclonus, being treated by neurologist in Boston. Takes depakote and has much improvement. No more falls! Hope you find this!

islakins

Feb 07, 2013

To: Tammi5252

I have also recently been diagnosed with Lance Adams Syndrome with epilepsy. I would really like to disscuss this with other sufferers if possible.

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