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Pressure, sharp pain left temporal/ parietal region with chronic lighth...
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Pressure, sharp pain left temporal/ parietal region with chronic lightheadedness

I am a 26 y/o female with a history of a CVA at 10 months old which left me with right-sided hemiparesis and dystonia, but few if any other deficients. For the most part I have lived a full and normal life, a frequent world traveler with an outgoing personality.

In May 2012 I started receiving regular botox injections for my dystonia. It almost always results in rapid onset lightheadedness lasting weeks (could be unrelated but this is when the symptoms started). In July 2013 I heard what can only be described as a “crackling/popping” sound in the left temporal/ parietal region with associated pressure which resulted in a rapid onset of lightheadedness. Since then I have been suffering from a heavy feeling on the left side of my head, constant lightheadedness, a chronic feeling of pressure and jolts of sharp pain in my head, and photophobia.  Where the pressure is centralized there is a raised bump on the temple.  I also went to trigger point therapy and the sharp pain was intensified while hitting the levator scapulae and upper trapezius muscles.  

I have had numerous tests cleared: MRI of head, CAT scan of head, Tilt table test & blood work.  I am getting extremely frustrated as these symptoms are very real.  I am not currently taking any medication or consuming alcohol, which seems to make my lightheadedness significantly worse. One thing is for sure, the longer this remains a mystery, the more rapidly my mental state is deteriorating and doctors are writing this off as an anxiety disorder.  For lack of better words I am not convinced at this juncture this is an anxiety disorder, yet I will admit I now have anxiety due to the longevity of the situation.

Any input would be greatly appreciated.
  
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