I have an 'ideopathic' polyneuropathy with sensory, motor and autonomic symptoms. I've had this for past 10 years. It progressed rapidly early on. Then after many IVig treatments it went into stasis. This has been so for past 4 years. During the time I have used a wheelchair for mobility beyond a quite limite area. But, starting about 6 months ago with legs braces, cane and with a new cocktail of neurogenic drugs I became much more mobile. I also was given weekly physical therapy + TENS. From combination of above, muscle and nerve pain seem to also be significantly reduced. This is wonderful! However I now notice that I have lost virtually all ankle movement, toes can not move, I can only lift legs a few nches from ground when sitting or prone and only long enough to get my pant legs over my feet. Putting on pants is now very difficult. My arms rise only to about 40 degree angle from body at sides. Head motion at neck is also sigificantly reduced. These new reductions in movement control or total loss of control are alarming. They have come with a strong electric tingling from groin down entirety of both legs.
I ask how far this new direction of my illness might be going and at worst what is in future for me.
Copyright 1994-2016 MedHelp International. All rights reserved.
MedHelp is a division of Aptus Health.
This site complies with the HONcode standard for trustworthy health information.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.