Pseudotumor cerebri

[TXLU]

I am 25 year old female who was diagnosed with pseudotumor cerebri in April 2007.  Since then I have had an LP and been under the care of a neurologist as well as a neuro-opthamologist.  I have also been on 1000 mg of Diamox daily this whole time.  
About a month ago I tried to take myself off of the Diamox.  Within one week I was having horrible headaches (to the point of where I could not get out of bed) and my vision was blurring out.  I already have a permanent blind spot temporally in the left eye from the pressure being too high, so when I noticed the rest of the vision blurring out I was very concerned.  My neurologist promptly put me back on Diamox and is considering another LP.  My headaches have not gone away since restarting the Diamox.  Since I have been on the medication for almost a year should I consider a surgical approach such as a shunt?  I have an appointment with my neuro-opthamologist in 2 weeks and would like to discuss it with him.  Any advice would be very helpful at this point.  I am very tierd of being on the medication and dealing with it's side effects.

[wildermommy]

I also have tingling in my hands and feet as a side effect of the diamox but my neurolighst prescribed a potassium supplement and taking that with the diamox had stopped the tingling.

[selmaS]

HI....do either of u know if u also have chiari?......or a syrinx?......if u would like, we have a chiari forum and a member that has a shunt already.....u may want to chat with her/him. First hand info is great!!
Just click on the forums balloon on the top tool bar.

Good luck
Godspeed
"selma"

[shawk]

I have been diagnosed with psedotumor a couple of months ago. i was prescribed diamox but i stop taking it because of the tingling in my legs which was uncomfortabl. Now that i stopped my eyes are really blurry, headaches,  my ears seem to clog up. is diamox really that important to take? Shawk