Question about Symptoms

[CleverAntics]

Hello,

I am a twenty year old female, who, up until five months ago has always been in perfect health.  Around that time, I began to experience fatigue, headaches, tremor in my hands, involuntary movements, muscle spasms (fasiculations), and teeth chattering.  However, the symptom that is the most bothersome is that when sitting or standing, I rock back and forward, side to side, or in a circular motion (it is very noticeable).  If I lay down with my feet in the air, they sway, or if my arms are by side, they also sway.  

I've had multiple blood tests, an MRI of my head, an EMG, and a NCS; everything has been normal.  My neurologist has put me on Neurontin which helps with the involuntary movements and muscle spasms, but does nothing for the rocking and swaying around.  The neurologist is at a loss on how to stop the rocking and just wants me to "not think about it."  

Do you have any recommendations on how to move forward?  Other tests that can be preformed or any idea what might be causing this?  Thank you greatly.

-Mary

[CCF-Neuro-M.D.-PW]

I cannot give you a clinical diagnosis over the internet but I do have some ideas/suggestions

One possibility is called "Orthostatic Tremor" which is a known entity that usually occur in middle aged women, in which on standing (or activating posture muscles) a tremor occurs which could cause your type of movements. The EMG can be diagnostic but must be done when you are activated and having the tremor. Its not clear what the cause is. Several drugs can be tried including clonazepam

Other possiblities include frontal lobe seizures, so this may need to be evaluated with EEG (brainwave recording), or another type of movement disorder.

Another opinion from a movement disorder specialist and an EG evalaution would be a good step forward.

Good luck

[majikson]

Hello,

My son is now 6 yrs. old, he was diagnosed with movement disorder called "paroxysmal choreaothetosis" when he was 3 yrs. old, his neurologist said that this kind of disorder could happen to anybody, and at any age, but will go away in no time. My son had his EEG done and the result was normal, though he had many abnormal brain activities it's non epileptic seizure. His neurologist wants him to take carbamazepine it's a seizure medicine. We disagreed, because of the fact that she was the one who said that my son didn't have seizure. We even videotaped the episodes of his  movements, most of the time it happens when he's asleep and when he's not doing anything. His MRI was normal but they found obstruction of his pansinusitis. Then a CT Scan came back with chronic sinusitis with polyps. He was also diagnosed with obstructive sleep hypopnea and stops breathing for about 5x/hr. Everytime he complains about his big headache then high fever follows. My son has breathing problem also,and with the help of nebulizer and an albuterol spray he uses everyday. He just had his Spect Scan done and result came back abnormal and clinical correlation needed, there's a reduced uptake of cerebral blood flow on his parietal left temporal horn. Right now we're still waiting for upcoming appointment for the evaluation and differential diagnosis. Anyone, please if you have any information or advice what to expect with my son's condition. Could this be anything related to the event of the fall to the floor from his immediate delivery. He fell face down and his umbilical cord tore from the fall. Up to this day we still don't get a clear answer from the same group of doctors, we are so desperate and eager to know what's wrong so it can be taken cared of, and get the necessary treatment needed.

Thank you,

majikson