RE: Focal Cortical Dysplasia

Posted By Angelina Thio on September 26, 1998 at 04:06:26:

In Reply to: Re: Focal cortical dysplasia posted by CCF NSG MD /gsh on September 23, 1998 at 09:43:30:





:
: In Reply to: Re: Focal cortical dysplasia posted by CCF NSG MD /gsh on September 23, 1998 at 09:43:30:
:
: Dear Doctors,
:
: Sorry if I had re-post this message as it might had been posted the wrong place. I had a few more questions about my son, whom I had posted for an interpretation of his MRI Examination report on 23th September 1998,
: "Focal Cortical dysplasia".
:
: First of all, I would like to thank you for your prompt replies. After doing some reading and searching for his MRI report's facts, I had come to conclusion that he is suffering some some sort of cortical dysplasia. I understand that this is an abnormality in development. But since I found that he is 'different' from mormal childern in Nov 97, I quit my job ( both my husband and I are full-time employed and I admitted that I neglect my son for around three years in the hand of a relative-baby-sitter.  Since his birth until almost three years old, he is isolated to a clean-empty room with only television programs to grown-up with him.  Other than feeding time, he seldom get out of the room.). At that time, he just know how to claw and of course is unable to walk let alone run or climb and jump.
: Since I realised his problem, I've talk/sing to him and teach him to do all the necessary things. In less than three months, he is able to walk. Now after 10 months, his improvement is tremendious.(He can speak to me, at least express his hunger, toilet need, anger, frustration, happiness/ unhappiness, jump on the spot, climb-up staircase, step-bu-step down staircase, draw a human --with eyes, nose, mouth, neck, head, hair, ears, hands, leg, body plus two dots for nipples and one for cord. His reading skill can catch-up with his six-year-old elder brother. He likes music and can follow and hymes a song the second time he heard the music. There is not much problem in counting. ( But I've just beginning to teach him, He can count to hundred but addition is quite slow). Moreover, he likes schooling and do not beat, bite and disturb classmates like he used to anymore. Lastly, even his teacher praises him for his improvement.
: Is he improving? Can he be like normal if I presistently care and teach him? Losing a job for me is crucial for my family of three young children. I planned to use one year for him only and I need to go back to work-force again. You see, I need to care for the other two children. If as my doctor suggesting that he is hopeless, I will consider putting him in full-day day-care center and let him learn to take care of himself( I'm told that there is the only thing he can learn,  it will be fatal to teach him skills and a waste to give him education as he will never be able to catchup in anyhing. The only thing I can do is not to let him burden the family thus he had to learn to take care of his basic nees ---hygine.And that will be final. But I do not want to be unfair to him. He had his right to be somebody in life. Not a burden to the society I hope. This is very crucial for me as the decision will influent his whole life.  I hate to give up on my son.  I also understand that if his family do not support him, there will be nobody else to stand by him volunterily. Maybe this is a test of patient and love.  But Human can control all living organism why can't Human correct his impairness?
:
: I understand that seizures can occur with this condition, but so far, he had none. Will he had any other symthom in the future? Is there any past record of other patients known that had other illness?  Must I learn a technic or prepare any medication in case he had any symthom?
: As you mentioned, there is no specific therapy for cortical dysplasias, I do not really know what is the 'relative paucity of underlying white matter was noted over the temporo-parietal regions bilaterally'? Is the "white matter" is the one called "UBO" -- The Unidentified Bright Object? Is the temporo-parietal region means at both temporal lobe and parietal lobe or at the center of the two region? What is the white matter? Is it the old cells that do not die away after the growth of new cell ( Reproduction of new cell)? If it's at the upper temporal lobe, my son had tessed for his hearing and it's supposed to be normal. Moreover, he had a very good memory which is supposed to be influenced by the lower temporal lobe. The parietal lobe which let him recognize people had no problem in him. He do had comprehension and sensational problem. Moreover he likes to 'talk nonsense' but speak and pronounce well. Can I conclude that he has no problem in Broca's area but had a damaged Wernicke's area which is at the upper part of the temporal lobe?
: My child as I had gathered (I hope correct) sounds like he has a migrational abnormality.  ( Which I don't know what is migrational) 
: He has either focal cortical dysplasia, or polymicrogyria or focal pachygyria. (What are polymicrogyria and pachygyria mean?).
: I also know that my child will probably have learning difficulties in addition to his developmental delay.  But is it curable? Will he be normal? Will his speed of learning and pace of improvement be parallel to any normal children? What is the cause of the problem?
: I'm told also that my family might have tuberous sclerosis. ( What is this ?) Is it inherited?  And must I send my other two boys for examination?
: I would appreciate if you could recommend any neurogist to evaluate and confirm his diagnosis. I'm living in Hong Kong. And I do not mind to travel within Asia. If treatment can only be done in outside Asia, I would also like to find out the duration needed and cost of the surgery. And of course his chances of curing at least to what percentage.
: Thank you for your answer and again I appologized if I had posted this the second time at the wrong place. I hope my letter do not sound too complicated as my English usage is not good.  Sorry to take your time in reading this long letter.  For all the above, I thank you.
:
: Wishing everybody the best of health.
:
: Best Regards,
:
: Angelina Thio
:
: --------------------------------------------------------------------------------
: Follow Ups:
:
: --------------------------------------------------------------------------------
: Post a Followup
:      Name:
: E-Mail: (optional)
:  Subject: Re: Focal cortical dysplasia
: Comments:
:  
: Optional Link URL:
: Link Title:
: Optional Image URL:
:  
: --------------------------------------------------------------------------------
: [ Follow Ups ] [ Post Followup ] [ Neurology and Neurosurgery Forum ] [ FAQ ]



Optional Link URL:

Link Title:

Optional Image URL:








Follow Ups:


Re: RE: Focal Cortical Dysplasia CCF Neuro[P] MD, RPS 9/26/98
(0)