Thankyou for all your info. I am awaiting, gosh in this day and age, for a paediatrician appointment as I have changed, so that is not for another month or 2, and only he can refer me back to the neuro.
Her fingers curling appears to be from low muscle tone, although sometimes she can straighten them, they seem to sit curled, like she just does not have the strength needed to straighten them. Her fingers are unlike most baby's, they are not chubby and straight, they each have their own strength, and depending on her tiredness depends on how they will sit and affect her ability to use them. Her pinky's though, they just seem very limp, like the joint between the middle and the end, doesn't work very well at all. Do muscles die off over time if they are not used? The OT said massage and play that uses those 2 fingers, but it is very difficult to single out the pinky's. I don't know, I just worry for her and how she will be, although she is very beautiful. When tired, she still seems to hold one hand fisted, like newborns do.
Do you think that is it possible that it is not CP? I cannot find anyone really who has experience with hypotonia CP, what would the real name be??
By the way, I think you are amazing and very knowledgeable with all the help you give others her on this forum.