NEUROLOGY COMMUNITY
RSD/CRPS Help

RSD/CRPS Help

RSD/CRPS - need help
by Frustrated1977, less than a minute ago
I am a 33 year old female who was recently diagnosed with RSD/CRPS.  I have dealt with chronic pain since my early teens and was diagnosed with multiple congenital back issues along with chronic migraines.  I could write forever about my pain issues, but I am joining this support group after reading posts for months and months looking for advice and answers from people with similar issues as myself, more specifically the CRPS.  I had a right discectomy in August of 2009 at L5/S1 because of severe right leg radiculopathy and peripheral neuropathy that left me in terrible pain and the inability to walk.  After undergoing the surgery, I felt wonderful (well after the surgery pain wore off) and had my leg back.  I finished up 4 months of physical therapy and with the permission of both my neurosurgeon and physical therapist, was given the okay to begin walking and jogging on the treadmill (without an incline).  I love running and it keeps me, well I should say has always kept me, 'sane'.  I've also dealt with years of depression and anxiety, most likely due to the chronic pain issues.  It's one of those which came first, the chicken or the egg issues.  Anyway, I got a little bit over zealous with my jogging and began running about 3-4 times per week, 5 miles each time.  It felt great.  One Sunday while running in May, I thought I blew out my left knee.  I thought taking a week off at the gym would be the answer but nope, I was wrong.  Within that next week the pain escalated to my entire left leg, left foot and lower back.  My neurologist sent me back to my neurosurgeon after performing another MRI.  He guaranteed me no surgery was necessary but my leg needed an EMG to confirm no nerve damage.  My neurologist performed an EMG that week and three nerves leading into my foot were severely damaged and my peroneal nerve is pinched behind my knee.  The pain was is so intense I cannot walk without a cane.  An MRI on my knee shows a sprained ACL and a lot of fluid accumulation.  In June, I was diagnosed with RSD/CRPS.  I have been struggling over these past months, going from doctor to doctor looking for an answer/cure.  I have undergone six lumbar sympathetic nerve block injections that offered me at most 9 hours of relief.  When the injections wear off the pain is unimaginable.  A few times I have ended up in the ER thinking something went terribly wrong with the injection.  I'm just at my wits end.  I am finally, thanks to my PCP, on a dosage of pain medication that makes life livable, but still not enjoyable.  I have seen two different Anesthesiologist/Neurologist/Pain Management doctors at two facilities in the Boston area over these months and both have not given me many answers or options on how to fix my leg/foot and back.  One doctor even went as far to say I needed to stop taking pain medication because I was going to become addicted and to just 'deal' with the pain.  I honestly felt like punching him in the face.  Instead I came home and felt the urge to end my life.  If I didn't have a loving fiance, family and such great friends, I think I would.  I am beyond frustrated.  I don't know what to do.  The option of a spinal cord stimulator has come up many times, but I have heard mixed reviews and really want to have a baby after I get married in June 2012.  I know it sounds ridiculous for me to look the other way at a possible cure, but I guess I just need some advice and input from anyone that is reading this and finds an interest in my case or sees as similarity to what they are going through.  I need help.  I am sure I have left a bunch of details out.  For instance, I did see an otho doc that will not touch my leg although he said it does require arthroscopic surgery.  I just need help, advice, anything.  I will go anywhere in the world to see a great doctor that knows what RSD/CRPS does to you; mentally and physically.
Related Discussions
Post a Comment
To
Comment
Post A Comment
Go
Blank
Mood Tracker
See what affects your mood
Start Tracking Now
Blank
Pain Tracker
Track location and severity
Start Tracking Now
MedHelp Health Answers
Submit
Blank
Moody Me
Have more happy days!
Download Now
Top Neurology Answerers
620923_tn?1335125657
Blank
selmaS
Allentown, PA
1475492_tn?1332887767
Blank
Sidesteps
Seattle Area, WA
338416_tn?1260996698
Blank
jensequitur
Fort Worth, TX
Avatar_f_tn
Blank
ggreg
NC
999891_tn?1330652344
Blank
rod44
Cork city, Ireland
1548028_tn?1324616046
Blank
ku111
RSS Expert Activity
1741471_tn?1336957856
Blank
LIVE WEBINAR TOMORROW!-SUPER BODY, ... Blank
May 22 by Michael Gonzalez-WallaceBlank
2126606_tn?1335910182
Blank
Fibromyalgia Awareness
May 11 by Clare Waismann Kavin, RASBlank
2126606_tn?1335910182
Blank
Opioid-induced hyperalgesia reduces...
May 03 by Clare Waismann Kavin, RASBlank