my wife has fibro and when she went to see the specialist she was given a list of foods she can and cant, or should and shouldnt eat, and pretty much all sugar and all carbs were on the not to eat side, after starting this diet it took about 2 months to really take affect but the pain in her leg which is where most of the pain is in her case was really starting ease, she was starting to be able to use her legs more without the horrible after affects of having fibromyalgia, i really really do believe that a good and strict diet like the one my wife is on is strong remedy for the affects of fibromyalgia, i also was told by another lady i know who also has fibro, that she was taking a energy substitute a little like the protien shakes gym goers use, and it was a big big help she was less lathargic and wasnt in as much pain, i can completely understand that this condition affects people differently but i hope the information i provided might be of csome use
My experience echoes so many here. Misdiagnosis, ignorance and mistreatment. What I have discovered is that it is very likely my autoimmune response to an innocuous injury. Having contracted reactive arthritis when I had salmonella years ago (a reaction gainst the food poisoning),and apparently my longstanding seb. eczema is a belated reaction to cradle cap as a baby. All these things store themselves away to come and hit you later.
Thus I am really concerned that the RSD I have had in my right arm since March 2008 appears to be travelling along my shoulders and 'pulling' on my spine. No one will listen...has anyone experienced this particular kind of travelling pain? I am so scared.
(I am on tramocet, amytrypilin and pregabilin -Lyrica)
I think like fibro, very few doctors will know anything about RSD. So I would not be surprised if they don't know what it is.
RSD can remain localized to one region of the body indefinitely. In other cases, it can spread to other regions of the body spontaneously or by trauma to other regions of the body.
For example: In this illustration, RSD has spread spontaneously to the opposite upper extremity and to the lower extremity. RSD of the upper extremity can spread to the face causing problems with hearing and seeing. Also, RSD of the upper extremity is sometimes associated with difficulty in swallowing. RSD of the lower extremities can be associated with bowel and bladder problems. Thus the term Total Body RSD has evolved over the years as we learn more about this disease.
Hello its sad that you are going through this i have been diagnosed with RSD for 3 years the answer to your question is Yes RSD can spreed to others side of your body. I have 8 doctors i have seen Nerulogist/Ruthmotalogest/enstiulalogest/pain med doctor/therapy/phic doctor/or tho doctor/QME/IME.
they all told me the same. I have tried all med and blocks.SCS. RSD has changed my life i lost my house my friend my family and my self. the pain is always with me i live with RSD. and i know what you feel don't give up are you in CA. i have a very good doctor if you in San Diego area look for DR Franklin Kozin he is the best in CA. read about him he also was my QME. what med are you taking
for pain and etc...Good Luck
My legs are doing the same thing. And fibro has never caused me redness and swelling. I will let you know what the pain specialist says when I see him next week. :)
Here are two websites that will help:
http://www.rsdhope.org
http://www.rsdfoundation.org
It's very important to find a doctor, such as a pain management specialist or neurologist, who knows about RSD. Yes, RSD can spread and has a mind of its own. Usually, the spread is up the limb or to the opposite limb, but another type will spread wherever it pleases. I've had fibro for years and the pain is primarilily muscular. I've had degrenerative disc diseases (two back sugeries) for years. I've managed the pain of both well, However, I've never had any disease as strange as RSD, which also can cause systemic changes (increased blood pressure, heart rate and hot flashes, to name a few).
Knowledge is power, but it's still important to check out all neurologists and pain management specialists in the area. In the early stages, sympathetic nerve blocks might actually cure the disease. However, even if the disease can't be cured, there are ways to obtain symptom relief -- if the doctor knows what she/he is doing. Just keep on truckin' until you find an expert. Good luck!
Thanks alo for posting. Its so frustrating, I've posted in so many places and no one seems to answer. RSD is pretty much almost the same thing as Fibro, but it does cause swelling, and it spreads. Its caused by trauma, in my case surgery, from what I've read it is very similar and most who get RSD end up also getting Fibro for some reason. RSD causes severe nerve pain, and I'm finding out so does Fibro, but I just can't get anyone to say whether or not they had their RSD spread from the upper to the lower area of their body. I know it happens but sure would like to hear from someone who has had it happen to them.
I don't eat salt at all, never have, and I live near the coast and we've had an usually mild, and even cold summer, so the heat I've kind of ruled out also. I know my feet have swelled a lot when it was hot outside, but just can't blame this on the weather this time. And its been months now and its just not going away even a little. Also the swelling seems very different than the regular "too hot" feet swelling. When I've been in a hot summer for awhile my ankles would swell up, but this is just different, the tops of my feet are real swollen to where I can't even put sandals on, and it seems weird but even the bottoms of my feet seem swollen, and tight, & of course my ankles and calves also. Its just hard to explain, but its different than the too much heat swelling.
I actually know a lot about RSD and very little about Fibro, but the little I've read it appears to be very similar, symptom wise anyway. I just can't seem to get anyone to answer about this swelling and spreading of the RSD from an upper limb to a lower limb.
Thanks again for taking the time to post, I really appreciate it. :)
I also don't know what RSD is, but I know a lot about fibromyalgia. Itdoes not cause the swelling that you have. It does affect the nerves, and can cause pain in the legs and calves, etc. Do you eat a lot of salt? In this heat this summer, I notice my feet and legs swelling a lot more than usual. I hope you can get some answers, I know I didn't help much, but wanted you to know you're not along out here in cyber-space. Good luck.