RSD

My comment is to a letter posted  by SherryDenice.  Has ANYONE dx you with RSD?  You have all the symptoms and they are the worse thing I have ever experienced.  Ask you MD, please.  You have to get control of it, now, or it will get debilitating if it is in fact RSD/Reflex Sympathetic Dystrophy.  Mine was dx by my orthopedic MD following a skiing accident and knee reconstructive surgery.  Started in my left knee, left foot; migrated to my right foot, arms and most recently to my neck and face.  It feels like you are standing in a huge brick oven and the muscle and bone aching/cramping is horrible.
Good Luck and let us know how you are doing.
Kelesmom

[natalie0710]

I can relate to your burning pain. I have been dx with RSD since DEC 2006 in my left wrist. It is very painful and has changed my life drastically. I am a RN and know that I could never go back to the bed side to care for patients. I am fortunate enough to be able to still work but knowing I can never return, is the worst feeling in the world. I still keep trying each day, I remove the focus of poor me until a positive. First was educate every nurse in the hospital I work at so they are not able to ruin someone's livelihood as one of my peers did to me. Second, campaign was to fight back and make that hospital pay for what they did to me. That didn't work out as I intended. No nurse plans her day to go start an IV and deliver  RSD to their patients. So making the hospital pay was not a good idea. The best thing that came out of that was the nurses don't start iv's any longer an IV team is called at that hospital.

Today, I am waiting for approval for my spinal cord stimulator trial. I am hoping to get this done and over with my early next week. If I can control some of the pain ( the awful burning, screaming, aching pain), I would be able to get the physical therapy and hopefully gain my strength back in my hand. I see it as one step closer to the bedside. Unfortunately, today I am told my liver enzymes are elevated. Not sure why they thing the Motrin and Tylenol I live on for pain medication during the day could be the cause. I am just hoping they stop the surgery.

Well, thanks for listening if you ever need to chat, just let me know. Hang in there and be strong every negative has its positive side.

Natalie