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Neurology (Expert Forum)
Re: Brain tumor
This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Fibromyalgia, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury.
Re: Brain tumor
by cf-MD, Jan 01, 1995 12:00AM
Posted By ccf MD on September 21, 1997 at 18:56:00:
In Reply to: Brain tumor posted by G.M.Koudijs on September 18, 1997 at 16:07:08:
My son (27 years old) has a brain tumor (astrocytome, grade 4).
He has already been operated twice. After the second operation he
was given radiotherapy, but he received no chemotherapy. He has
been hospiltalized several times in addition because of complaints
of sensory disturbances, dizzyness, seizures and lack of ability to
maintain food after meals (throwing up almost everything).
Now the doctors have detected metastases in his brain
and they informed me and my wife that they ran out of
conventional treatment options. With his and our consent they
have put him on an experimental chemo-therapy program.
Since we do not want to stand by idle and are afraid that we might
not be aware in Holland of possible new (experimental)treatments or
drugs, we would very much appreciate it if you could inform us
about whether there are such recent or new developments in this
area.
Thank you very much for your help
Gert Koudijs
PS:
Please note that my e-mail address is
m.***@****
and not the adress from which this message is sent (which belongs to
a friend who helped me with my English).
Since my friend is away in the near future, could you please answer me
through my own address?
Thanks.
=
This certainly represents a difficult time for you and I think the best answer
would be to contact the American Brain Tumor Association listed below:
ABTA
2720 River Road
Des Plains, Il 60018
847 827-9910 800 886-2282
Fax 847 827-9918
Web Site: www.abta.org
Good luck.
In Reply to: Brain tumor posted by G.M.Koudijs on September 18, 1997 at 16:07:08:
My son (27 years old) has a brain tumor (astrocytome, grade 4).
He has already been operated twice. After the second operation he
was given radiotherapy, but he received no chemotherapy. He has
been hospiltalized several times in addition because of complaints
of sensory disturbances, dizzyness, seizures and lack of ability to
maintain food after meals (throwing up almost everything).
Now the doctors have detected metastases in his brain
and they informed me and my wife that they ran out of
conventional treatment options. With his and our consent they
have put him on an experimental chemo-therapy program.
Since we do not want to stand by idle and are afraid that we might
not be aware in Holland of possible new (experimental)treatments or
drugs, we would very much appreciate it if you could inform us
about whether there are such recent or new developments in this
area.
Thank you very much for your help
Gert Koudijs
PS:
Please note that my e-mail address is
m.***@****
and not the adress from which this message is sent (which belongs to
a friend who helped me with my English).
Since my friend is away in the near future, could you please answer me
through my own address?
Thanks.
=
This certainly represents a difficult time for you and I think the best answer
would be to contact the American Brain Tumor Association listed below:
ABTA
2720 River Road
Des Plains, Il 60018
847 827-9910 800 886-2282
Fax 847 827-9918
Web Site: www.abta.org
Good luck.
