Re: Cerebral Cavernous Angioma

Posted By krista on July 09, 1998 at 12:43:51:

In Reply to: Re: Cerebral Cavernous Angioma posted by CCF NSG MD /gsh on July 07, 1998 at 13:07:12:







ISO support/info organizations for cerebral cavernous angioma or cerebral
vascular diseases?  If not, I am interested in starting one, but where
to begin?  Thanks
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: Dear Krista,
Sounds like a good idea to me.  I don't know of any support group for patients
with cavernous angioms.  Your best resource for other patients with cavernomas
would be your surgeon.  He cannot give out names of people with cavernomas,
but you may be able to convince him to distribute flyers about such a group
and may give you names of other surgeons who could do the same.
Good luck.
Thanks - I'm getting help from NSO, and will be posting to this location
as the group develops -- appreciate any feedback, or sending anyone else
who is interested my way.  Thanks again -- Krista