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Neurology (Expert Forum)
Re: Dilantin-Gum Overgrowth
This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Fibromyalgia, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury.
Re: Dilantin-Gum Overgrowth
by CCF Neuro[P] MD RPS, Jan 01, 1995 12:00AM
Posted By CCF Neuro[P] MD, RPS on January 18, 1999 at 08:57:33:
In Reply to: Dilantin-Gum Overgrowth posted by crager on January 18, 1999 at 00:56:12:
Although I have posted before and hate to take up your time, I would
like to ask some questions about dilantin and gum overgrowth. I know that gum
problems are a side affct of dilantin but how can I fight this problem?
I have only had grand-mal seizures within days of giving birth of my last two
children and have had no seizures at any other times unless they have been
of a very mild type and I have had some strange experiences so I'm not sure
if they were seizures or not. I have an appointment with my doctor on the 30TH
and since I have no neurologist would greatly value your opion. I am just lately
starting to experience gum changes, such as swelling, redness, bleeding, but
since I have a nephew with this problem and know the outcome, I am very upset.
I would like to know how long does a person need tobe seizure befor it
is safe to go off the medication? I take a dosage of 500mg per day and
would like to start tapering it off and eventually get off completely.
My last round of seizures were on 3/20/98. Any advice would be helpful.
Dear Crager:
Sorry to hear about your gum problems. Approximately 50% of people on dilantin get gum disease. We are unsure why, but it happens. Extremely good gum care is needed to prevent gum overgrowth. We have found with good dental care, 6 month visits to the dentist is a must, and proper dental care (flossing, brushing etc) the effects of dilantin on gum disease can be minimized. We are beginning a clinical study to see if a medication might be useful in preventing and once present reducing gum overgrowth. When the study is completed, the results will be published and if it works (Since I am running the study I feel like it will work) then your doctor can put you on the medication.
As far as when one can stop medication for epilepsy is complex and different epileptologist handle it different. Alot of it would have to depend on your EEG, MRI, family history. If the MRI were completely normal, the EEG normal, and a negative family history, then 2 years of being seizure free on medication would be the majority view. However, if the modalities of MRI or EEG or family history are not normal, then it becomes a more difficult question. That would depend on what and how abnormal the tests were. Without knowing what your tests showed, I really can not make a speculation. At least, most of the time your seizures are under control. Given the fact that you still have break through events, I would doubt if your physician would take you off medication at the moment. Best of luck.
Sincerely,
CCF Neuro[P] MD
In Reply to: Dilantin-Gum Overgrowth posted by crager on January 18, 1999 at 00:56:12:
Although I have posted before and hate to take up your time, I would
like to ask some questions about dilantin and gum overgrowth. I know that gum
problems are a side affct of dilantin but how can I fight this problem?
I have only had grand-mal seizures within days of giving birth of my last two
children and have had no seizures at any other times unless they have been
of a very mild type and I have had some strange experiences so I'm not sure
if they were seizures or not. I have an appointment with my doctor on the 30TH
and since I have no neurologist would greatly value your opion. I am just lately
starting to experience gum changes, such as swelling, redness, bleeding, but
since I have a nephew with this problem and know the outcome, I am very upset.
I would like to know how long does a person need tobe seizure befor it
is safe to go off the medication? I take a dosage of 500mg per day and
would like to start tapering it off and eventually get off completely.
My last round of seizures were on 3/20/98. Any advice would be helpful.
Dear Crager:
Sorry to hear about your gum problems. Approximately 50% of people on dilantin get gum disease. We are unsure why, but it happens. Extremely good gum care is needed to prevent gum overgrowth. We have found with good dental care, 6 month visits to the dentist is a must, and proper dental care (flossing, brushing etc) the effects of dilantin on gum disease can be minimized. We are beginning a clinical study to see if a medication might be useful in preventing and once present reducing gum overgrowth. When the study is completed, the results will be published and if it works (Since I am running the study I feel like it will work) then your doctor can put you on the medication.
As far as when one can stop medication for epilepsy is complex and different epileptologist handle it different. Alot of it would have to depend on your EEG, MRI, family history. If the MRI were completely normal, the EEG normal, and a negative family history, then 2 years of being seizure free on medication would be the majority view. However, if the modalities of MRI or EEG or family history are not normal, then it becomes a more difficult question. That would depend on what and how abnormal the tests were. Without knowing what your tests showed, I really can not make a speculation. At least, most of the time your seizures are under control. Given the fact that you still have break through events, I would doubt if your physician would take you off medication at the moment. Best of luck.
Sincerely,
CCF Neuro[P] MD
