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Re: Good Pasture Syndrome...Need info, please
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Re: Good Pasture Syndrome...Need info, please

Posted By CCF neuro MD MM on November 29, 1998 at 19:16:24:

In Reply to: Good Pasture Syndrome...Need info, please posted by Alyss on November 29, 1998 at 13:31:02:






Hi
Ive been sick for about 9 months and was recently diagnosed with possible MS and Fibromyalgia.  Took forever to get this diagnosis, and Im still a little uncomfortable with the MS part.  (gee, could it be denial)?
My doctor doesnt seem to be 100% certain of the diagnosis either.  He says that eventually I will have new problems and symptoms, which will make a pattern that can be interpreted better.
Anyway, since this diagnosis, I have found that 2 of my aunts (on mother's side) have Good Pasture Syndrome.  Ive never heard of this, but they both think that this may be my problem as well.  
My questions are:
1) Can you please give me a general definition (cant find info anywhere on net or elsewhere)
2)  What are the symptoms, and how is it diagnosed?
3)  Treatment, prognosis, and is it hereditary?
4)  Is this similar to MS, and do you think I should mention this to my doctors?  I hate to appear that Im diagnosing myself, but Im unsure if this is important to my situation or not.




Goodpasture's syndrome is an autoimmune disease in which the antibobies
are directed against the lungs and kidneys, it causes lung problems,
frequently presents with coughing of blood and kidney problems ,
including renal failure.
It is not directly hereditary, but a tendancy to develop this and other
autoimmune diseases can run in families.
It is treated with drugs which suppress the immune system
including steroids,cyclophosphamide, plasmaperresis, many patients require
kidney transplantation.
Goodpastures is not in any way similar to MS and Goodpastures alone will
not cause neurological problenms.
Since both Goodpasture's and MS are both autoimmune diseases you should mention
this piece of your family medical history but it is unlikely to be very
relevant.
We only claim expertise in neurological disorders on this site ang this
does not really come within our area of specialty so you may need to speak
to an internist of rheumatologist for further information.
Thank you very much for your time and suggestions, it's much appreciated!
Alyss

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