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Neurology (Expert Forum)
Re: Sarcoidosis and Neuro Involvement
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Re: Sarcoidosis and Neuro Involvement
by Sharon__0__0, Jan 01, 1995 12:00AM
Posted By Sharon on July 16, 1999 at 09:49:27
I was diagnosed several years ago with Sarcoidosis. In the past year I have been having problems with my eyes. I see blue or white flashes out of my right eye, when I look at someone thier negative image remains when I look away, almost a ghost like image. I can stop at a red light and then I will see spots of red for a few moments afterward, much like you would see when a camera flashes in your eyes, but for longer periods of time, and this happens with almost any bright color. I have a head pain, not ache, in the back right side of my head that comes and goes which can be quit severe at times. Recently I started to feel a tingling in my right arm, almost like cold water going over it. I have seen an eye doctor who refered me to a neurologist. The neurologist did a spinal, MRI and EMG of my arm, all negative. He put me on verapamil for several weeks which brought no relief. Now he is suggesting I see a neuro-opthamologist? Is this the right next step? Could this be Migraines or sarcoidosis related. Any input would be valued. Thank You!
I was diagnosed several years ago with Sarcoidosis. In the past year I have been having problems with my eyes. I see blue or white flashes out of my right eye, when I look at someone thier negative image remains when I look away, almost a ghost like image. I can stop at a red light and then I will see spots of red for a few moments afterward, much like you would see when a camera flashes in your eyes, but for longer periods of time, and this happens with almost any bright color. I have a head pain, not ache, in the back right side of my head that comes and goes which can be quit severe at times. Recently I started to feel a tingling in my right arm, almost like cold water going over it. I have seen an eye doctor who refered me to a neurologist. The neurologist did a spinal, MRI and EMG of my arm, all negative. He put me on verapamil for several weeks which brought no relief. Now he is suggesting I see a neuro-opthamologist? Is this the right next step? Could this be Migraines or sarcoidosis related. Any input would be valued. Thank You!
Dear Sharon:
Sorry about your sarcoidosis. In the face of negative exams and labs, on the surface it does sound like migraine. One should see changes on the MRI and some postive lab results from the CSF to indicate that your sarcoid has spread to the brain. However, without a family history, a clear signs of other symptoms of migraine, it is not a firm diagnosis. What you describe is compatible with several migraine variants, one of which is occipital neuralgia. The treatment is indocin, and if it doesn't respond than it is likely not this entity. You could also have another type of variant of occipital migraine. Just to be sure, I would see the neuro-opthalmologist and rule out any problems from his/her standpoint. Without seeing the films, lab results and doing the physicial neurological exam myself, I really can't make a firm diagnosis. But, if the neuro-opthalmologist gives you a clean bill of health, then I would see if this isn't migraine variant.
Things that are episodic we usually think of epilepsy and migraine. What you describe is not epileptic in nature, so I wouldn't consider epilepsy at this point.
Sincerely,
CCF Neuro MD
Follow Ups:
Sarcoidosis and Neuro Involvement razorback 7/16/1999
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Re: Sarcoidosis and Neuro Involvement CCF Neuro[P] MD, RPS 7/16/1999
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Sarcoidosis and Neuro Involvement Suellen Heath 7/16/1999
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Re: Sarcoidosis and Neuro Involvement CCF Neuro[P] MD, RPS 7/17/1999
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