Re: What's wrong with me???

Posted By MMH on December 17, 1998 at 18:34:29:

In Reply to: What's wrong with me??? posted by Carrie on December 17, 1998 at 14:24:59:






I am a 21 year female who only seems to have seizure when I am sleeping.
I also always have them when I am on my period.  I was at a "not so good"
hospital this last weekend, and I had had four seizures and they did a
tegretol level (I am on 400mg XR in the morning and 500mg XR at night) and
they said that it was zero.  I don't understand how it could be zero if I
was taking my medication, which I was.  Then a few days later I had another
one and I got a new level taken at a different location, and they said my level
was 8.9.  I don't understand what is going on and I don't get to see my
doctor until Jan. 7th.  My questions are:  What is the normal range on the
tegretol XR levels?, Does my period have something to do with this?, and What
could have caused my tegretol level to read zero?  I have only had seizures
since I was 16 and there is no known cause.  I have had CT scan, MRI, and
multiple sleeping tests.  No results were not normal.  Please help!
This may be off the wall, but have you had an endocrinology work up?  I
knew a girl a few years ago who had seizures at night, and turned out to
have some kind of pancreatic tumor.  As long as she was awake and eating
she was fine, but at night her blood sugar fell and she seized. She
apparantly had to eat a lot to keep her sugar up, as she was quite obese.
Sugery fixed the problem.