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Neurology (Expert Forum)
Re: arnold chairi malformation type 1
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Re: arnold chairi malformation type 1
by madalen, Jan 01, 1995 12:00AM
Posted By madalen on April 16, 1999 at 09:25:36
My son has had a headache for 40 some days straight. The mri showed that his symptoms point to chairi malformation type 1 plus also very bad sinius.
He was on a antibiotic for about 1 month with no relief. I am now being refered to a neurogist to help with the headaches. Is there any recommendations for a doctor in the Pittsburgh area? He is 13 years old and 6' 262 lbs. Does he go to a pediatics or adult doctors?
My son has had a headache for 40 some days straight. The mri showed that his symptoms point to chairi malformation type 1 plus also very bad sinius.
He was on a antibiotic for about 1 month with no relief. I am now being refered to a neurogist to help with the headaches. Is there any recommendations for a doctor in the Pittsburgh area? He is 13 years old and 6' 262 lbs. Does he go to a pediatics or adult doctors?
Dear Madalen:
Sorry to hear about the problems your son is having. Most of the time we see MRIs that indicate an Arnold Chairi Malformation I and the child does not have headaches. If the child has headaches and the child has a ACM I then it is often thought to be related. If there is associated findings such as hydrocephalus or a synrinx, then we think there is a relationship. We tend to eliminate all the confounding factors before we say that the two are related. First, is there a family history of migraine, what is the character of the headache, are there any associated neurological signs that could be associated with the ACM etc. Then if we think there is an association, surgery may be needed. This is usually the last thing we will due. If your son is thought to have a severe ACM that is inducing headaches that cannot be controlled by medications, then he likely needs surgery. I would recommend the best neurosurgeon possible. Usually a pediatric neurosurgeon is better because they see more of these malformations than an adult neurosurgeon would. But, if in your area an adult neurosurgeon has experience in this type of surgery, and your pediatrican recommends him/her, then go by his/her advice.
I would get names of neurosurgeons from your pediatric neurologist. Children's Hospital in Pittsburg has many good pediatric neurologists and we would heartly recommend any of them.
Sincerely,
CCF Neuro[P] MD
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