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Neurology  (Expert Forum)
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Re: brain tumor?
This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Fibromyalgia, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury.

Re: brain tumor?

by CCF neurology MD MM, Jan 01, 1995 12:00AM
Posted By CCF neuro MD MM on November 22, 1998 at 08:24:19:

In Reply to: brain tumor? posted by ghd on November 21, 1998 at 23:42:51:






I am a 35 year old who had never been in the hospital.  I had a seizure during my sleep and an MRI indicated an orange size tumor in my temporal lobe. I was told I had a glioma II that could not be removed.  A craniotomy was recommended to rule out cancer and remove any of the tumor not intertwined.  The biopsy samples came back with no abnormalties and the doctor went on the assumption of vasculitis. I was on prednisone for 6 weeks.  The second MRI showed no change and vasculitis has basically been ruled out.  I was told I had a glioma I, although this is usually in children and in a different area of the brain.  After the appt., I got a copy of the MRI report.  The doctor doing the report stated that the mass had been missed when taking samples of the tumor.  The neurosurgeon is certain he did miss all samples, especially in a mass this size.  He is now referring to it as a glioma I/II.  The only "treatment" I am on is dilantin to avoid seizures and was told it was my choice to stay on that.  If I decided to stop taking it, I would have a 1 in 100 chance of a seizure.  I am to return in 6 months to check the growth.  If the same, check it in a year.  I feel fine most of the time (physically anyway).  My memory is not as sharp as it was about a year ago.  This mass/tumor is 5x5x4.  Does it seem possible this could be missed during surgery?  Can I have a mass this large, one seizure, and basically feel fine for 2 months?  Any comments or ideals?  Thank you so much for this forum.  I read it daily.



  =
I cannot say what happened during surgery, it is hard to imagine that a mass
this size was missed but if the surgeon and radilogist say so we must assume
it is true.
The symptoms produced by a mass are more dependent on location than size,
it is possible to have a large mass in a temporal lobe with out symptoms
although memory function is located in the temporal lobes so it is not
surprising that you report some problems in this area.
I think your chances of having a seizure are higher than 1% , you
already had a seizure before treatment , this makes it much more likely
that you would have a seizure if you came off medication, this is a typical
result of a mass in the temporal lobe as many seizures origionte in
this part of the brain.

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