Re: myotonic dystrophy and tegretol

Posted By CCF MD GS on August 29, 1998 at 10:00:37:

In Reply to: myotonic dystrophy and tegretol posted by tom on August 27, 1998 at 23:02:23:






I have a pt. c Myotonic Dystrophy.  His two sibling daughters live back east and have been started on tegretol for this.  I have no information on the use of tegretol for this condition, saw your web site  do you know of any studies/ published on the use of tegretol and myotonis dystrophy.  a PA in CA



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Thanks for the question. Wish I had something more to offer you. I did a medline search back 5 years and found no information. The two most effective drugs that have been used to treat myotonia are phenytoin and quinine but their lack of effect in the clinical setting is due mainly to the fact that the myotonia patient is not bothered by the myotonia but by the weakness. If your patient has daughters on this medicine I suggest you contact their doc and ask the purpose of the medication and if they have information regarding its use. Good luck
This information is provided for gernal medical education purposes. PLease consult your doctor regarding diagnostic and treatment options.