Really need help - My symptoms are severe, but don't fit any diagnosis

Posted By Donna on April 21, 1999 at 09:34:52
Hi.  I am having a horrible time and drastically need help.  Five months ago I noticed Neck and shoulder stiffness, I also began to be a bit forgetful. About two weeks into this thing, I would get sharp, quick, acute pains in various odd places of my body - my collar bone, by rib cage, my shin - then they would go away.  Then for a couple of days I had horrible headaches - both dull and achy as well as sharp awful pain that lasted only seconds and pressure across both of my cheeks (I do not have a sinus problem).  From this point, it was all downhill.  I started having a choking nausea in the morning and noticed some blood in my nose.  My appetite disappeared, my legs at time felt weak and numb, I started getting twitches all over my body - different types of twitches, some pulsated like a hearbeat and you could see my arm moving, others were internal and no one could see them at all, but I could feel them in my stomach, my foot, or wherever, and then others are very quick and make my skin jump.  I have unilateral pain in my left arm mostly in the upper arm.  The pain gets worse with use and improves with sleep.  And horrible back pain that is not relieved by anything.  The back pain also jumps around.  Sometimes upper, sometimes lower right side, other times around the spine and everywhere.  My loss of appetite turned to severe nausea where I would throw up or felt like I couldn't swallow because my stomach felt so horrible.  A few more symptoms and I'll tell you about testing - I was hospitalized for 2 days due to leg stiffness that made it difficult to walk and vomiting - I got out, looked in the mirror and noticed that my PUPILS WERE HUGE AND UNEQUAL.  They would not consrtict (noticeably) to light.  They are now smaller, but are unequal or unequal depending on their mood.  Fatigue, emotional crying, numbness & tingling, frequent urination for a couple of weeks, and diarreah (diarrhea).  The testing - 2 brain MRIs 3 months apart, negative, c-spineMRI 5 months ago, negative, t-spine MRI, negative, clinical by MS specialist, positive for something due to reflexes, pupils, and weight loss, but she didn't know what, neuro-opthamologist originally said Adie's pupil, but dismissed this when I kept telling that I had pain behind the eye and then due to eyes changing again, ANA negative, ammonia level was elevated a month after I got out of the hospital it was 58, dropped to 31, then 28.  EMG negative, evoked potential negative.  I continue to feel awful.  Something is wrong and no one can find it.  I get twitches everywhere, everyday and my eyes are not normal.  What do you think and what should I do?????? Oh, 4 years ago I have pain from under my left arm into the chest and then my arm went numb, resolved itself within a few hours.  2 years ago I got out of bed and fell down, legs just wouldn't work for a few seconds.  Both of the past events also happened in December.  I am a 29 year-old female.  Please don't tell me that I should feel okay because my tests are negative.  This "thing" is not leaving me.  I have always been healthy and active.  Thank you so much.  










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Re: Really need help - My symptoms are severe, but don't fit any diagnosis Can you please answer one more question? 4/24/1999
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Re: Really need help - My symptoms are severe, but don't fit any diagnosis CCF Neuro[P] MD, RPS 4/24/1999
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Re: Really need help - My symptoms are severe, but don't fit any diagnosis Donna - Dr. Please respond !!! 4/22/1999
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