Hi,
'm 49, female & I wonder if anyone can give any advice on the following, as I have a GP appointment soon & over several years of dealing with this have had no joy with what I feel is a correct diagnosis or medical help, & have pretty much given up trying & just got on with it, However recently this has got much worse,& I am really struggling to cope with it, I want/need to work again, but cannot do much for long with my right arm without setting off a very bad flare up...........hence why I am going back to my Doctor & trying again.
Problems "feels" as if it stems from my neck, & is cold numbness, burning pain & tingling, currently all down my right arm, though at the moment worse on lower 3 fingers & underside of arm to my elbow , jumping to about 3/4 inches above elbow then up & round to my right shoulder, a bit on my shoulder blade, & up right side of my neck, & up the side of my face with tingling & numbness on my cheek & eye socket, eye feels weird sort of numb darkness to my vision on that side, but if I cover my eyes, there is little difference, though my vision generally hasn't been good for years........the more I type, the more intense the pain/numbness gets, & it spreads, I now also have nubness & heat in my ear.......& I know from experience it will soon also spread to my head & severe headaches & weird visuals.....sort of semi white out, & migraine like zig zag lines & fizzy vision....... & my hand/arm become harder to control the longer I go on, & arm feels tense & cramped, currently slowed right down with typing & feeling light headed with the pain, & now all of my arm is equal in pain numbness & finding it hard to concentrate & focus, & had to stop & continue later due to now quite severe sick headache, right eye feels numb & "tunnel vision"...........I now also am starting to get weird "boat rocking" sensations, something I often have, & can feel as if ground suddenly falls out from under me, I have over the years got used to this & cope, but do notice a definite link to this symptom & using my arm/neck/hand
this weird burning cold numbness also jumps down my right leg, a little at back side above back of knee/outer low thigh & then the whole of my out side of my calf, I noticed on walking, that my left outer foot wants to curl under a little & I am having to consciously make it walk normally.
I also have problems with trigeminal pain, thought (by Drs) to be down to lymph gland sweling & pressing on nerve, as it doesn't fit with trigeminal nurealgia..............recently realised that antibiotics for ongoing sinus infection hadn't workd as eventual swab showed infection to be severe & of different type...just finished these, so fingers crossed
I do have Diagnosis of Fibromyalgia, M.E. (cfs) but I have never felt this fit with this always right sided & predomantly arm/neck/hand/face/head nerve problem really fits this...................., I also have diagnosis of Chronic Sinus Disease, (3 lots of surgery & now said to be medically okay, but still have ongoing right side sinus problems) persistant Chronic headache & migraine & high BP,& mortons nuroma in both feet, take no BP meds, or migraine & mostly only basic pain killers as I am intolerant to a lot of drugs, & tend to have severe reactions....last new Migraine drug put me in hospital, I also have diazepam for muscle spasms & that can help a little with this pain, as can oramorph, but usually not worth the side effects...............I also have bowel & bladder problems & currently under investigation at incontenance clinic, but linked to low back pain & diagnosed rectocele
Since the beginning (about 8 years now) I have persisant electric shock type sensations in my hands, again learned to live with & work around as triggered by certain movements...such as rolling dough into a ball, flicking a light switch...I now automatically use my hands in a way to avoid triggering this...but recently got worse too, & triggered more easily, sort of like nerve "snapping" in my hands, some times from just flexing them.
I did have MRI about 6 years ago, but I was told "no significant abnormality" also had carpel tunnel MRI a few years ealier, this came back clear, no surprise as again it just didn't fit the symptoms, but GP wanted to rule it out....I do have a lot of other symptoms, but probably fits with given diagnosis.........at the time I first took ill I did have a lot of falls, & a bizzarre accident which involved my being blown off my feet with my Daughter in strong winds, whilst pushing my then baby in her buggy & having to fight to wrestle myself & buggy back to earth, this hurt my neck & arm, I also years ealier had a work accident involving a rail collpsing onto my neck, hospital diagnosed "bruised nerve' in my right side neck, symptoms to that were similar, though much milder than experienced now...........I also had a serous accident where I shattered my right elbow at 13 yrs. threatended with Op to replace elbow joint, thankfully not needed after I ignored advice to keep arm still, whilst waiting on surgery & muscle pushed bone back into place & it healed well & given me little problems since.........Doctor at time said it was a bit of a miracle
I hope this makes sense, now i n a lot of pain head etc from typinf
thank you in advance for any advice