For the last 5 years I have had a condition happen where a varying spot on my body will feel sore. I will touch it and then start to burp/belch. I usually use a tennis ball as the spots come in my back a lot to rub it for 15-20 minutes which causes me to excessively burp/belch until the spot is no longer sore. It has happened all over my body even my head and face. It seems to be getting worse. The Drs. are stumped, they just give me odd looks :(
Also 2 years ago I had a brain bleed that has happened 2x's since. Again they are stumped. They have said it could be Cavernous Malformations but it doesn't fully fit. Before this last bleed the burpin/belching g was extremely excessive and there was a lot of pressure on the spot on my head that had the bleed. I am wondering if the 2 conditions are related. The Drs. aren't able so far to tell me what is going on. Any ideas?
I have had a very similar situation for decades now, but my soreness was all along contracted connective tissue in my skull; when I would press on the sore points, I'd burp -- sometimes for hours on end. Each burp eased the soreness a little.
Doctors thought I was imagining things or that it was a coincidence. I had my brain bleed 4 months ago [exactly 2 weeks after your above post]. They are not making a connection to my bleed and the skull pain with burping, but I felt sure that there was a connection -- indeed, that the pain with burping was some kind of an early warning sign -- and now your post seems to confirm my suspicions.
I went to a teaching/research hospital, hoping that they would make the connection or at least want to study me, but so far, nobody's interested and I'm back to feeling like I'll have to figure it out myself.
Do you still get those pains? If so, are they near connective tissue? [for me, I'm leaning toward a connective tissue disorder -- a mutation of collagen]
Four months after my bleed, I've started having the skull pain with burping again 2 days ago, but only behind my left ear -- near where my bleed was.
Please feel free to write me separately or friend me.
It may not be related the soreness and belching. The soreness could be due to the intra cranial bleeding. Symptoms will depend on the location of the bleed. The bleeding could be due to arteriovenous malformations as suggested or due to hypertension. Recurring soreness could also be due to neuropathy. Here, a nerve conduction study is usually diagnostic,it shows the effects on the nerve.
So nice to feel not alone. It sounds like it c/b something similar. The difference would be that the pains for me are more often in my back and shoulders but also other areas including my face and head. At the moment it is in the bottom of my jaw and I have on stuck in my ankle that I sprained some time ago. It does improve with massaging or using the ball to manipulate it and I usually get rid of it from that particular spot. Every so often one take a long time to get rid of. It causes lots of burping but also relief. The last brain bleed I got a severe migraine headache with it and then my memory was slightly affected. The pain too was behind my left ear and that is where the bleed was. I rubbed it so hard that I ended up breaking the skin. I don't know if they are in my connective tissue. How would I know? The first time I had a small seizure and some temp paralysis. There was no head pain at all when it happened. They thought it as a brain tumor and I had a brain biopsy to get tissue to see what it was. Unfortunately they where only focused on cancer and the tissue wasn't checked for other things. I looked up the disorder you mentioned and can relate to this: Symptoms in autoimmune connective disorders may affect the function of specific organs such as the kidney involvement that often occurs in SLE or the joint pain characteristic of rheumatoid arthritis. Pain, inflammation, tenderness, dryness and irritation of mucous membranes, and rashes and hives are all prominent features. They're typically characterized by alternating periods of remission and flares.
I have been having muscle pain in my glutes. and hamstrings which I have been putting down to menopause. I am getting occasional hives or rashes and my nasal cavity is dry and bleeding. Maybe coincidence but I am going to look into this further. I am also getting bumps and blisters in my mouth which I read is another symptom.
At the moment I am waiting for my MRI results to make sure that the last bleed has cleared up. They say it c/b a cavernoma but it is not typical and part of that is due to the fact that it heals completely, only blood staining shows on the MRI's. I am in Canada near Toronto. They have sent my blood to Boston to Yale for a genetic study to see if I have the genetic make-up for cavernous malformations. Hopefully I will hear back soon. I'm guessing not and then I can rule that out. Also there seems to be some relation to menses as the bleed seems to happen just before or when I have menses.
What happened to you when you had the brain bleed and have you had only the one (not that one isn't enough :) )? Are you in the USA? I am 51 and it happened when I was 49 for the first time. If you don't mind me asking at what age were you when it started? Do you by chance have Idiopathic guttate hypomelanosis (IGH)? Small white spots on your skin. Just thought I'd check. to see if we both have that too.
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