I have had/known about the schwannomatosis I have for about 10-12 years. It was a relief to find the source of pain I had been having for the previous years but now I am concerned about the pain medication I take for relief of the stabbing and/or dull pain from some of the largest tumors. They are in the T6 region and follow my intercostal nerve pathway on the right side if that helps.
I am wondering if there are any new medicines to deal with pain (other than oxycontin) or surgery techniques to get rid of these? I am not losing lower body function yet although the largest tumor touches my spine in a near-dumbbell shape through one of the vertebrae. I have recently started getting numbness in my last three fingers and "funny bone".
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