I am really saddend to hear about the situation with your son,,,very scarey I bet....If this was a problem coming from his back a MRI or CT scan should have shown if the spine is the reason for the inflammation....Not everyone ccan have pain with Sciatic nerve.....I have had problems with my back for two years now, had surgery in Nov04...my sciatica at times was VERY painful but at other times very suddle with just numbness in my leg or foot or a weird type of burning sensation...I think that if a MRI or Ct scan has NOT been done to look for a disc/back problem then maybe that might be an idea...Has he been to any therapists to see if he would be able to strengthen his muscles etc?? Also, he didn't have to have "hurt" himself to have injured his back it could be something congenital...When they did my surgery they found that 2 of my nerves were conjoined that they had to separate...they did not know they were there B4 surgery..
Anyways, keep in touch and let me know how he is doing and if you have come to a conclusion...
GOOD LUCK!!
Thank you for your reply.
Darren adnt has any serious injury in his leg or buttock since he was born, even he has suffering foot drop at the moment, he isn't feeling any pain from his leg and spine. just felt very tired and weakness when walking in some distance.
some doctors said he might has sciatic nerve inflamation. I would like to know if thats the problem, what is the symptoms for sciatic nerve inflamation? should he feel pain and has temperature? can anyone provide some informations please?
If the sciatic nerve is a problem, your son must have some pain either in his her lower back, groins, side of his upper legs, knees and down to the feet. If he does, it may be that the sciatic nerve(s) are pinched in his lower back than you need to see an Osteopath for help.
Good Luck
Unfortunately I cannot give a clinical diagnosis or review images etc over the internet
The list of causes of hypertrophied or swollen nerves includes hereditary such as CMT, refsums disease, familial amyloid. There are several genetic subtypes of CMt, and specific genetic testing is available for some of them, it would be unusual though that only one nerve is affected
Acquired nerve hypoertrophy can be due to infiltration by a tumor, or granuloma (such as sarcoid, amyloid), a surrounding plexiform neurofibroma or the transformation of a neurofibroma into a sarcoma or malignant nerve sheath tumor, some infectious conditions such as leprosy, some parasitic infections, some metabolic disease such as acromegaly. There is a relatively benign hypoertrophy that affects one nerve of young adults called 'localized hypoertrophic neuropathy'. He should be evaluated for neurofibromatosis carefully - looking for skin lesions with a woods lamp, an ophthalmological examination for lisch nodules in the eye etc. The progressive nature may warrant a nerve biopsy if not already done to ruleout a malignant process.
If no-one can come up with a diagnosis (which is critical in terms of finding any form of treatment) in Australasia - then perhaps you would consider coming to the US for an evaluation - several largecenters including the Clevland Clinic can provide a fast track international patient evaluation with the appropiate specialists. The main drawback is that this is expensive. Contact the international center at the Cleveland Clinc if you are interested. Dr. Neil Friedman is our pediatric neuromuscular specialist.