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Neurology (Expert Forum)
Second opinion on MG
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Second opinion on MG
by Mark-Dowdy, Feb 12, 1999 12:00AM
I have been dx with MG for 2 1/2 years. I had a thymectomy 2 years ago and
have been on Mestinon and prednisone at varying doses. Recently, I have
gotten worse, particularly with breathing problems. My neurologist does
not have much experience with MG (I was her first MG patient.) I would like
to talk with a neurologist experienced in treating MG. I don't want to
change neurologists, necessarily, but would like another, more tested
opinion. My questions are these: If I am willing to come to the Cleveland
Clinic, is it feasible for me to speak at length with a MG specialist, and
is it possible for that specialist to communicate with my neurologist? Also,
will insurances generally cover such a consultation? (I do not have an
HMO.) Additionally, is it possible to speak with an MG specialist in
Florida, versus, Cleveland? Thank you.
Doctor's Answer
by CCF Neuro[P] MD RPS, Feb 12, 1999 12:00AM
_
Dear Mr. Dowdy:
Sorry to hear about your MG. Sometimes, it can be a difficult disease to maintain. There are other medications to try and also the possibility of IVIg and/or plasmaphoresis. It would all depend on your history and what levels of medications you are currently using. I would get a second opinion here at the Cleveland Clinic in Cleveland if the problem were my parents or myself. You can make an appointment with either Dr. Levin, or Dr. Shields. They are both very experienced in this disorder and would be happy to sit down and talk with you, and also communicate with your physician. You can call 1-800-CCF-CARE. Good luck with your MG.
Sincerely,
CCF Neuro[P] MD
