Sensory symptoms and BFS

I have fasciculation syndrome going on six months.

However my neurologist does not feel sure this is simply BFS as I have also developed sensory symptoms. I suffer:

buzzing
burning
tingling
pricking
crawling
electric shock sensations in legs and an electric shock sensation in spine which he calls lermittes (sp?).

I also suffer severe fatigue which makes it difficult to get thru the workiing day.

Can sensory symptoms, especially lermittes be part of benign fasciculation syndrome.

[CCF Neuro[P] MD, RPS]

Dear AMR:

The diagnosis of benign fasiculations is pretty much one of exclusion.  After a normal EMG, MRI of the brain, neurological exam, lab tests, etc. we tell a patient that he/she has benign fasciculations.  Yes, all the you describe we have seen in patients with completely normal testing.  But, we make sure all the testing is normal and if complete testing has not been performed, then that need to be done to fully eliminate possible other diseases that can give you fasciculations.  

Sorry that I can't be more forthcoming.  I do hope that your fasciculations resolve soon, together with your other symptoms.

Sincerely,

CCF Neuro MD

[Barbara]

I am in the midst of being tested for many of the symptoms you describe. In addition, I get very fleeting "aches" (for lack of a better word) which last for a few seconds or a couple of minutes. These can be anywhere in my body - tip of finger, knee, chest, calf. All my blood work (extensive) has been negative, along with the neuro exam. Tomorrow I have an EEG and evoked visual testing. No muscle weakness. I am only fatigued because these symptoms often disrupt my sleep. I'm being told that if these other tests are negative that this may be an anxiety disorder. But I'm also going to investigate the possibility that this can be related to menopause as I've seen a few references in other places to these symptoms and menopause. Don't know how old you are (or even if you're a female!)but it may be a consideration.

[CCF Neuro[P] MD, RPS]

Dear Barbara:

If your symptoms are pretty much at night, please have your neurologist investigate restless leg syndrome.

CCF Neuro MD

[What if they're NEVER at rest... only du]

My symptoms (as described above) NEVER occur at rest in bed or shortly upon awakening. ONLY after ambulating a bit and continuing do the day do I suffer from fasciculations, burning, tingling, etc.

[Pat]

I have had similar symptoms 19 months determined to be  small fiber sensory neuropathy, severe burning to upper torso, neck, back and elsewhere. Mine never started distally but in the face, neck and back at onset.  Been seen by 5 Neuros who have tested many meds none help/ I have also had 2 psych consults all normal.  Recently my new internist brought in a psych consult who suggests the long duration means this is a brain chemistry problem versus small fiber neuropathy detected via multiple nerve studies. No known etiology but two Neuros believe this was drug induced, post viral or both. This Psych consult has suggested using Schizophrenic meds and shock treatments to treat non abating sensory neuropathy.  I have never heard my 5 neuros ever suggest anything like this.  Just wondered if any of the Neuros on this forum have heard of such treatments for
sensory neuropathies?

[CCF Neuro[P] MD, RPS]

Dear Pat:

DEFINATELY NOT!  Only if you have organic depression.

CCF Neuro MD