Hi CCF Doc, I wait for a Mri brain flow study to be scheduled for me. I have Arnold-Chiari Malformation type 1, but mild in my doctors opinion- 6 mm. herniation.
I have been experiencing severe neck pain along cervical spine with huge lump sticking out at the base of cervical spine. My neck is stiff where limited movement.
I have loss of strength/sensation in my arms and neck/shoulder area.
I have talked to other patient from support group who have ACM/Syringomyelia. They all tell me this could possibly be complication of ACM. Syringomyelia causes these
type of symptoms. Do you know this to be true from what I describe above?
I am worried my case is not being handled quickly enough. If I don't recieve treatment-surgical soon that I will be paralyzed. Not only that but my pain is getting to
the point where I can no longer function on a daily basis. My HMO insurance told me friday that they will consider refferring me out-service-area if needed for treatment.
Could you reccomend a doctor who specializes in ACM/Syringomyelia among your faculty?
Thanks, Sincerely, Anneliese
Sorry to hear about your problem. Yes, there is an association with a synrinx and ACH I. However, you should have seen the synrinx on the cervical MRI. The pain you describe sounds like the cape-like distribution that a synrinx might induce. However, without examining you and seeing the films of your cerivical spine and brain it is difficult to make an absolute diagnosis. Anyone of our neurosurgeons are qualified, Dr. Hahn is especially good in these cases. Good luck.
CCF Neuro MD
Copyright 1994-2017MedHelp International.All rights reserved. MedHelp is a division of Aptus Health.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.