Shaking episodes

I have been experiencing a strange episode that used to happen once in a while, but now happens almost everyday and I was wondering if anyone else here has experienced same.  I start out with an ocular migraine (flashing lights/spots in my eyes) and light sensitivity.  After a few minutes of that my neck and spine feel achy and weak (legs can feel weak too), and then I start to shake.  My whole body will shake.   Sometimes it lasts a half-hour, sometimes two hours.  Drs scratch their heads at this.  Any insight would be wonderful as no one seems to understand what I'm dealing with.

[mags59]

Bump?

[Dr Sharma]

Welcome to this medhelp neurology forum with your query. what you are going through is probably ocular migraines along with a seizure disorder. This can occur before or after the seizure event. These headaches are temporarily related to the seizure event and occur in unison. Migraine event is not produced from the epileptiform discharges in the brain. Migraines usually last longer and are not as frequent, have other signs that distinguish them like photo and phonophobia, vascular quality(pounding), location( occipital in your case)in pain and nausea. See if you can distinguish between migraines and seizures by headaches quality of both, frequency of both and coincidence of both together.  Are you taking any medicines for migraines?  Your neurologist could try an antiepileptic drug to see if the seizures and headache both go with it. Similarly if anti migraine medicine can abolish both the seizure and headache could be due to same etiology. I hope this helps. Please feel free to contact me for any clarification.