Aa
A
A
Close
Avatar universal
Should I replace the Bone Flap from Craniotomy/Craniectomy
Hi, I am in my 40's and in Dec. 2008 I had a very large brain aneurysm rupture, it was the biggest one any of my drs have ever seen. I had immediate surgery, during recovery I was told that I had another one that needed to be removed before it too ruptured.  I had the second surgery to clamp off the other aneurysm.  After the second surgery I ended up with MRSA (very bad staff) in my incision.  I again had to have immediate surgery and they removed a piece of my skull the size of my hand.  I waited about 5 months then they put in a plate in place of my bone (we could not save it because of the MRSA).  I again got an infection in the incision, this time it was regular staff.  They removed the plate.  It has been 3 months since then and i now have a large dent in my head where bone should be.  My neurosurgen has given me the option to have a plastic surgen repair the dent or leave it the way it is.  I am worried about not having it replaced. What if i fall and hit it, what if someone hits me, or if i get in a car crash?  But, I am also worried about having another surgery since i have had so many complications with infections that are fatal.  My doctor has given me the choice.  I would like to know if any one has left the bone/plate out and how is their quality of life?  Thank you.
Cancel
3 Answers
Page 1 of 1
Avatar universal
Hi, I had surgery because of an AVM in 2005. I had brain swelling so they removed the back part of my skull. Then I has mrsa, and spinal menigitis. I'm still living without my skull flap. its about the size of half my hand in occipital area. I would like to have it repaired but i'M afraid. I'm planning on going back to work. There is a slight dent but you have to know to know the bone is missing. I'm hoping that new procedures become available that make the surgery easier.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
1963662 tn?1328385914
I have also had a craniectomy, due to a birth defect that causes chronic migraines.  I am now 1 1/2 years post op and my regular doc, not the neurosergeon, wants me to get injections where the bone is missing due to extreme tenderness in that area.  I cant even sleep on my pillow without it hurting.  I am terrified.  I also wonder if a blow to the head might kill me.  Living in fear is not living at all!
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
Avatar universal
I HAD A LARGE MENINGIOMA BRAIN TUMOR REMOVED...  HAD MAJOR PROBLEMS FOR 10 YRS AFTER... THIS SUMMER WENT TO HAVE ANOTHER TUMOR REMOVED AND THE DOCTOR COULD NOT REMOVE IT B/C MY SKULL WAS GONE FROM MRSA. HE WAS SHOCKED.. THOUGHT IT CAME FROM MY FIRST SURGERY.. FINALLY AFTER 3 MONTHS OF BIG GUN ANT-BIOTICS AND SURGERY TO REMOVE THE INFECTION I NOW HAVE A PROTHETIC  SKULL. MY WORRY IS?? I STILL AM NOT FEELING WELL AND IT HAS BEEN 7 MONTHS SINCE ALL THIS HAS TRANSPIRED AND AM HOPING AND PRAYING (NO MRSA) !!!!! WHAT ARE THE CHANCE OF IT RETURNING... LAURA<3
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
Your Answer
Avatar universal
Answer
Know how to answer? Tap here to leave your answer...
Answer
Submit Answer
A
A
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Neurology Community Resources
Top Neurology Answerers
620923 tn?1452919248
Blank
selmaS
Allentown, PA
Avatar m tn
Blank
caregiver222
11079760 tn?1449081557
Blank
cjtmn
Minneapolis, MN
209987 tn?1451939065
Blank
tschock
AB
5265383 tn?1465260698
Blank
aspen2
ON
1780921 tn?1462244109
Blank
flipper336
Queen Creek, AZ