Spina Bifida baby

I have a baby boy 6m old who was born with myelomeningocele L5-S1. He is incontinent and I suspect has a neurogenic bowel only from my own research, not confirmed by the Paediatrician.  He has just experienced his first UTI which was very mild and did not include a fever.  I have expressed concern with the Paediatrician here in Australia about catheterising but he does not seem concerned and does not see it as necessary.  My son also has alot of pain when passing a bowel motion and now that we have introduced solids, is going, more or less, continuously whenever I change his nappy.  Sometimes he screams because of the BMs but since introducing apple & pear into his breakfast it is not so severe.  I have also informed the Neurosergeon at his last MRI of his painful bowel motions who, kind of, dismissed it too.

I have only just become concerned about the dismissiveness because I have found out that our son is the only case of SB in the community in the last 14 years, so wonder about his experience in this capacity.  He actually seemed perplexed when I told him I knew of other babies which are catheterised.

Is there something more we should be doing? I asked a couple of visits ago about Urology testing and he sent my son for an ultrasound which showed two urethras going to one of his kidneys but no sign of damage.  I just do not want to wait for damage before intervention.