I'm sorry for your relative, it is a lifechanging situation
Unfortunately I cannot give you any more information on what the lesion is or not and prognosis with the amount of information you give me.
Whatever the diagnosis is, it results in the same outcome - spinal cord injury and this is one of the most difficult rehabilitation times to go through, and she needs a lot of support
She may benefot from having a physical medicine and rehabilitation specialist to cordinate her care - with phsyical therapy, occupational therapy, home care, bladder and bowel managment, prevention of bedsores etc. She is at high risk for depression so this must be identified early and treated.
Try the National Spinal Cord Injury Association at www.spinalcord.org for more information on support resources
Firstly, I am not a doctor, but did have a partial spinal lesion about 1.5yrs ago (transverse myelitis which turned out to be MS), so I can only comment on what I know from this experience.
I assume they did an MRI and lumbar punture; what specifically did they say? There are various non-structural causes of spinal problems, including post-infectious and demyelination (including MS). The treatment, if any, is dependent on what they think is the underlying cause; they may have some idea of the type of lesion from the blood-work and lumbar puncture (ANA, protein, oligoclonal bands?).
Spinal lesions are difficult to deal with. Again, I'm not a doctor, but what I was told (and from my own research) is that the path to take with these cases is 1) the underlying cause and 2) rehabilitation. The first may involve steroids or immunomodulatory drugs (e.g. if the suspicion for MS is high). The second is to regain as much function as possible, and prevent further deterioration and/or complications. This is especially important with bladder/bowel problems.
How long since the presentation, and over what timespan from start to maximum disability? If the lesion is inflammatory, some recovery may occur over weeks to months.
Sorry not to be of much help over the forum! It would be great if you could put more details of the tests if available, I think it would also be very valuable to the Dr. answering these posts.
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