Neurology Community
Stiff Person Syndrome
About This Community:

This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Stiff Person Syndrome

I have been living with Stiff Person Syndrome for a year and i want to know if there is anyone out there with this disease and if so what type of pain regimine are you on and does it work?
Related Discussions
6 Comments Post a Comment
Blank
Avatar_n_tn
Hi ioanna72,
I have had stiff person's for five years and have learned some range of motion exercises, as opposed to all out stretches, from my physical therapy provided.   I also believe it is imperative that you would get some massage. I get approximately one hour per week, and it is golden.   If I do not get this massage on my legs and back I suffer from the tin man effect
and fall down all to often.  My hope for you is that you can find somebody who can give  you the massage without charging you too much money.
Blank
Avatar_m_tn
My wife was diagnosed with SMS a year ago. She is on Valium and this had made her life 100 times better. She also subscribes to a forum with people with SMS and receives a lot of good info.
http://www.livingwithsps.com/l-support.html  
Blank
1379583_tn?1294263771
I need to talk with someone about Stiff Person Syndrome.  Is there anyone out here that is still participating in this discussion?  

Please help!

QBee
Blank
Avatar_f_tn
i been told i got stiff person syndrome but am wheelchair bound. Is there anyone out there that still in this discussion as need to talk to someone
Blank
Avatar_m_tn
My mom has breast cancer and we think she now has this syndrome - how do you test for it?  We live in Frisco, TX - she will be going in for a mastectomy in August, needs a knee replacement, has a drop foot in her left leg and cannot walk at all from being in the hospital for almost 3 months now and in bed most of the time......just looking for help and some answers - she is in physical rehab now, but can't even stand up.....
Blank
Avatar_m_tn
Ask the doctor for a GAD-65 blood test. The higher the number,the worse,is how it was told to me.

Prednizone, volume , baculem-sp? And pain medicine are necessary. And don't over do any thing. Quiet is also good,and MOST IMPORTANT.....LITTLE AS POSSIBLE STRESS.  LOL

If you have this and the other diseases that usually come with it, there will be little chance of les stress.

Good luck everyone :-)
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Neurology Community Resources
RSS Expert Activity
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eating Control: How to St...
Aug 28 by Roger Gould, M.D.Blank
233488_tn?1310696703
Blank
New Cannabis Article from NORTH Mag...
Jul 20 by John C Hagan III, MD, FACS, FAAOBlank
Top Neurology Answerers
620923_tn?1405964489
Blank
selmaS
Allentown, PA
338416_tn?1260996698
Blank
jensequitur
Fort Worth, TX
1780921_tn?1384615710
Blank
flipper336
Chandler, AZ
352007_tn?1372861481
Blank
LisaJF
1751596_tn?1406776760
Blank
kristy12
Berlin, Germany
Avatar_f_tn
Blank
Invida
MI