Strange Head Sensation and symptoms - Migraine/epilepsy/something else?

[woody198900]

If you could take the time to read this and then give me your thoughts, hopefully some new theory could emerge:

it all started abouth 2 years ago, when I was lying in bed in the morning and in that 'about to get up' and 'still drowsy, lying in' stage I would have an odd sensation in my head. Sort of like a head rush, but more overpowering. How I would imagine a seizure to feel like if it was only in the frontal lobe of the brain (and not in the rest of the body).When awake I would never have these, and they happened very very rarely.

The next stage was when I was sitting down at the computer, and I experienced the same sort of sensation as above, but while i was awake. and much much less intense. again this happened rarely.

After this they became more frequent when awake. Then after a weekend Drinking with friends, the 'Hangover' was not regular headache, but these "odd rushes" (that sometimes feel like a flutter above the eyes, but sometimes feel like a muscle cotraction starting off softly contracting then intenselt contracting then softly then finish). These would happen once every 20 seconds. then next stage after having these frequent 'rush' feelings I gradually began to see vast amounts of eye floaters and eye flashes. untill flashes seemed permanent. Muscles would twitch a lot. I will get a feeling of swaying within my own head, even if Im not swaying physically. sometimes when a 'rush' occurs i feel as if my head is pulled backward. Sometimes as if one side of my brain is heavy, then the other side becomes heavy etc. I catch myself starring into space often, just at one place, losing focus and 'looking through' the object. and I feel withdrawn from things at the moment, as if I have no emotional attachment to them, I just see the things, as if I cant properly absorb the information (another example is - recalling past events, but the normal emotion that goes with memories doesnt seem to  be there). Would have some cold patches appear all around my body, like pins and needles, but feels almost like very fine cold water on small patches of skin. NONE OF THIS IS PAINFUL

(* Note - the word rush is not at all like a head rush when getting up. feels more electrical, or muscular orientated)

Lately Im having the suspicion that the 'rush' feeling has a connection to my eyes, sometimes my eyes shake when one comes about. eyes are never drawn up to the skull like in a fit. This correlates with the eye flash disturbance etc. Some Optic Nerve abnormality, or due to the swaying feeling possibly some brain stem problem (which is the center for eye and ear nerves). Or Epilepsy.

I went to many Doctors (6 or 7) and all of them had no idea. saying it could be some sort of migraine. No tear in the retina. Epilepsy hasnt ever come up. symptoms are always described as strange.  

Any thoughts would be much appreciated, or if anybody has similar symptoms.


Additional information about me - my posture (neck) is a little hunched, could this be causing some sort of tension that causes the above? I use the computer a lot. never had a serious illness. have smoked marijuana before. not a lot though. did binge drink, but havnt since symptoms

EMAIL - ***@****

[bella215]

hi woody
i also have had head waves. i explain them like the feeling you get when you hit your funny bone. seem to come and go for only a second , and usually happens when i raise my shoulders and arms or bend my head back or forward. also happen when i almost trip aor are surprised . been going on for almost 2 years, been to u of m and other neur docs. also have ocular rosea, never thought they were connected. good luck make sure you get mri of brain and all the tests you can , dont give up .

[LMNJ29]

I have suffered from migraines for many years I can trace it as far back as when I was thirteen and who knows maybe even earlier.  In my late twenties I became aware that Onions or the smell of onions or anything in the onion family triggered a migraine event for me.  This excludes garlic which are also part of the migraine family so I am told. And, I too have had this "rush" like sensation going through my brain.  It is almost like the blood vessels are opening up then finally going back to normal lasting less then a minute.  It is not at all an uncomfortable feeling and is almost a euphoric sensation.  The duration is brief and usually repeats several times.  I am a 45 year old male and have been tracking this for many years now as they always preceed a severe migriane headache within 12 hours.