After a recent stroke, I was diagnosed through arteriogram with Vasculitis, although the diagnosis is young and I don't know what type. For the past year, I have been experiencing a strange set of body symptoms, revolving around a profound chilling sensation. Regardless of ambient temperature, I have been getting spells where I suffer whole body chills, with body temperature dropping to as low as 94. Wrapping my body does not help, it is like being left outside naked and being so cold you cannot do anything but shiver. These last from 1/2 hour to several hours, and lately, since the stroke, the chill episodes are followed by distinct changes in my stroke symptoms - Nerve sensations and numbness are either worse or better, different areas are subject to numbness than before, and one session even led to a paralysed arm having motor function return (limited) after the chills. There is always some sort of neurologic change that comes after these chill sessions, and although they seem harmless, I cannot find explanation for them. Doctors cannot explain the phenomena. Is there anyone else out there with a "broken thermostat", and unusual chill episodes?
Well I haven't had a stroke that I'm aware of but I to am sufferring from surging chills that is not dependant on temp. I also have exaustion and neck pain and burning eyes but the worst are these cronic chills with no answers
Chills without fever can be due to anemia, hypoglycemia, hypothyroidism, and excessive anxiety.
Anemia can be diagnosed by blood hemoglobin levels. Hypothyroidism is a distinct possibility and can be diagnosed by thyroid function tests.
At the same time also make sure you eat regularly and cut down on your day to day stress.
I would also suggest you to discuss all these possibilities with your treating doctor and take his opinion. Let me know if you need any more information. Take care!
thanks for the comments - I was just diagnosed with Anemia after a slew of blood tests, and will begin a treatment round this week. I also have Vitamin B12 and D deficiencies, not expected at all. If I find out what's causing all this I'll post it as well.
I just have to wait it out - it is a warning that problems are about to start, I usually lie down at that time (because I'm very fatigued usually at the same time) and am able to fall asleep. By the time I wake up again, it's 4 hours later, the chills have subsided, and the only thing I notice is that my symptoms have reached higher levels. Over time (next couple of days, the symptoms backtrack a bit, so it's like going 4 steps ahead, then dropping back 3 steps. I always have worse symptoms at the end of the cycle (and this has been going on for 4 months). It's like a slow, creeping paralysis. I've gone from just some numbness in my feet and hands to now, with my hands and arms fairly useless, my arms cannot be raised over my head, and very bad cramping in the muscles involved all the time.
I have almost the same problem with the chills. I had a stroke seven months ago and though I am recovering well I still have these strange episodes of being freezing cold. I cant get warm no matter what and all I can do is try to sleep. It usually goes away after several hours. I am left with a feeling of extreme tiredness for a couple days. Then all is well again until it hits again several weeks later. My doctor is baffled as well. I am sorry for you but am happy to hear that I am not alone. Good luck to you.
My mom had a stroke in June 2011. She is experiencing the chills just like you describe. She also has trouble with her emotions during these episodes. The doctor has prescribed antidepressants but I don't think they're the answer. If you get more information please post. I want so desperately to help her. Thanks
I had a stroke 9 months ago and have had the same symptoms. My body temperature goes down to 94. I get chilled so much I shiver and my whole body vibrates uncontrollably. I started drinking hot herbal teas and taking hot baths to warm up. Then I started have excruciating pain on the side of me affected by the stroke. My blood work and everything else the doctor could think of has come back normal. I do know my messaging center in my brain is mixed up. I think my circuits have shorted somewhere. It will be nice when someone figures this out.
My fiancé has been getting what he describes as "brain chills". Just like how your body gets the chills but he gets them inside his head. They last about 2 seconds and came rarely. But he is starting to get them more often in the past few months and I'm starting to get concerned. It's not painful when it happens. Just like a spasm or a "chill" in his head/brain... Help...
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