Strange chills

[rfsjr]

After a recent stroke, I was diagnosed through arteriogram with Vasculitis, although the diagnosis is young and I don't know what type.  For the past  year, I have been experiencing a strange set of body symptoms, revolving around a profound chilling sensation.  Regardless of ambient temperature, I have been getting spells where I suffer whole body chills, with body temperature dropping to as low as 94.  Wrapping my body does not help, it is like being left outside naked and being so cold you cannot do anything but shiver.  These last from 1/2 hour to several hours, and lately, since the stroke, the chill episodes are followed by distinct changes in my stroke symptoms - Nerve sensations and numbness are either worse or better, different areas are subject to numbness than before, and one session even led to a paralysed arm having motor function return (limited) after the chills.  There is always some sort of neurologic change that comes after these chill sessions, and although they seem harmless, I cannot find explanation for them.   Doctors cannot explain the phenomena.   Is there anyone else out there with a "broken thermostat", and unusual chill episodes?

[katiekate521]

Well I haven't had a stroke that I'm aware of but I to am sufferring from surging chills that is not dependant on temp. I also have exaustion and neck pain and burning eyes but the worst are these cronic chills with no answers

[DrNoopurMD]

Hi,

Chills without fever can be due to anemia, hypoglycemia, hypothyroidism, and excessive anxiety.
Anemia can be diagnosed by blood hemoglobin levels. Hypothyroidism is a distinct possibility and can be diagnosed by thyroid function tests.
At the same time also make sure you eat regularly and cut down on your day to day stress.
I would also suggest you to discuss all these possibilities with your treating doctor and take his opinion. Let me know if you need any more information. Take care!

[rfsjr]

thanks for the comments - I was just diagnosed with Anemia after a slew of blood tests, and will begin a treatment round this week.  I also have Vitamin B12 and D deficiencies, not expected at all.   If I find out what's causing all this I'll post it as well.

[METS1]

Do you have a method of your own to stop the strange chills?   Hot liguids? A shot of whiskey? Bundle up in a sweater or coat?  Any trick?  M07002S

[rfsjr]

I just have to wait it out - it is a warning that problems are about to start, I usually lie down at that time (because I'm very fatigued usually at the same time) and am able to fall asleep.  By the time I wake up again, it's 4 hours later, the chills have subsided, and the only thing I notice is that my symptoms have reached higher levels.  Over time (next couple of days, the symptoms backtrack a bit, so it's like going 4 steps ahead, then dropping back 3 steps.  I always have worse symptoms at the end of the cycle (and this has been going on for 4 months).  It's like a slow, creeping paralysis.  I've gone from just some numbness in my feet and hands to now, with my hands and arms fairly useless, my arms cannot be raised over my head, and very bad cramping in the muscles involved all the time.