Sunct

[Miss5377422]

I am a 26 year old female. My neurologist recently diagnosed me with Sunct (Short-lasting unilateral neuralgiform headache with conjuntival injection and tearing) Pretty much to sum it up in a normals persons "point of view" I get severe burning/stabbing pain on the left side on my head that ranges anywhere from the top of my eye, forehead, behind my ear and sometimes what seems to be the base of my scull. My left eye goes red and starts tearing and also my left nostrel starts to run dpending on how severe the attack is. I have severe neck cracking. I start to feel the pain from the moment I get out of bed, until I fall asleep again. I seem to sleep a crazy amount just to try an keep myelf from feeling any pain. The pain only lasts seconds but happens anywhere from 50 (on a good day) to 200 times a day! In between attacks I get an aching feeling in my head. HAS ANYONE ELSE BEEN DIAGNOSED WITH SUNCT? I read up on it as much as I can, but because it is considered to be a "rare disease" with no cure, there seems to be very little information. I want to figure out different things people have tried with success. I have a energy filled 5 year old and cannot continue to live like this! I am currently on 100mg lamotrigine with still no relief! I am constantly frowning from being in pain all the time. I just want to live a normal pain free life, WHY ME? Please help if you can!


This discussion is related to Occipital head/neck pain.

[Miss5377422]

Oh yes, I dont know how to edit, so I will add on here. I have had an MRI with and without dye, coming back normal.
On a scale of 0-10 (0 being the least intense) I would rate the attacks with a 10 without a doubt :(