Thanks so much for this forum. Its a godsend for people who need help.
I currently have symptoms of pain, numbness and tingling in many areas of my body including face, abdomin, hands, arms, legs, buttocks. Lower back aches a lot. The lower back ache, front of leg pain/sensation (particularly thigh) and abdomin pain is new. I have not seen Dr. about that.
I have RA. Many tests, blood normal except RF positive, ANA neg. though. MRI brain -normal, MRI = c-spine c5/6 herniation supposed not touching anything important, c-spine x-rays - mild atlantoaxial instability, lumbar - l5/s1 surgery good results - (pain numbness in leg is different leg), MRA - normal, evoke potentials normal, EMG upper -for carpul tunnel - normal.
I sleep great. If I lay down on my back/no pillow and don't move I don't have sensations.
When I make the slightest movement, I get a sensation somewhere - could be almost anywhere.
I feel like this is structural because it is related to movement, but all the tests seem to say no. Drs. say the don't know.
Do you think it seems like fibromyalgia?
If not, do you have any other ideas on what we should look for and how?
Drs. stumped. PCP says to prepare myself emotionally for never figuring it out. I don't give up on myself easily.
Thank you for your reply.