Syringohydromyelia pain? treatment?

Please read and provide any suggestions. I have a thick skin so fire away. I just about at my wits end and don't see the medical community providing any answers or understanding. What else can I try?

After dealing with worsening pain in my mid-back shoulder blade area since 2004, I went first to a physiologist then a neurosurgeon. Two MRIs showed a syringohydromyelia at T6-T7. I was "ASSURED" by both physicians that syringohydromyelia do not cause pain and there were no surgical options. Neither physician could find any other cause for my pain and as such, discharged me. I tried occupational then physical therapy, both of which only increased my pain level. My current stop is with a pain management group and a very nice anesthesiologist/pain management doctor who, without any better candidate, I have an irritated nerve in the T6-T7 region. Two months ago I had a TESI (thoracic epidural steroid injection) which did not provide pain relief or increased mobility. Following my Dr.'s advice I had a second TESI last Thursday and this time instead of providing pain relief it has increased my normal pain to a barely tolerable 8 on the pain scale.

Meds:
20/0.8 Embeda Morphine Sulfate
50mg Tramadol as needed (does not do much that I can tell)
2mg Tizanidine as needed (not much for pain relief, puts me to sleep)

Tried in the past:
Hydrocodone 7.5mg/325 up to 3x day (best med so far but Dr. didn't want me taking that much)
Skelaxin 800mg (upset stomach, no noticeable pain relief)  
  

[selmaS]

http://www.medhelp.org/forums/Chiari-Malformation/show/257?camp=msc

Hi U may want to post in the chiari forum as we have members with syringomyelia....and syringohydromyelia too and they may be able to offer u some advice.

"selma'