Neurology Community
Syrinx
About This Community:

This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Syrinx

I have been diagnosed with a syrinx from the end of my spine to C-2 /C-3. This has been about 6 months ago. I have seen 8 neurosurgeons and they can do nothing for me. Every day I try to use and exercise my muscles, especially my legs and arms. Some days I can do ok for a few hours and some days I can barely get out of bed.. All these doctors, including my family doctor, have told me to enjoy every day to the fullest. I have been left not seeing a future, but I am 67 years old and have had several ruptured discs operated on since 1975. In 1997 I was diagnosed with a bone wrapped around my spinal cored. I was operated on with good recovery, but my surgeon couldn't remove the bone. He chipped it off to verify that it was bone and inserted more skin so if it grew there would be more room for the spinal fluid to go through. I went back to work for a couple of years and my legs started hurting to bad. All I see is a pretty close meeting with death. I can't drive, can only walk with a walker, can barely type without making a lot of errors (used to type 80 words w/o errors), have to stay in bed about 80% of my life and there are so many little things that I can't list them all. Please give me your opinion on my condition. Thank you for helping me with this. Kiki


This discussion is related to Myelomalacia.
Related Discussions
Avatar_m_tn
Welcome to the site and to the community. You have come to a place where people are very supportive and have a lot of information. I would like to point out that
as the information on your left says, this is only my personal advice and you should always consult a doctor with problems first. Also, while it is
understandable to want information or advice about medication/s you should never alter or stop without speaking to the prescribing doctor first.
The advice I give is from personal knowledge and or experience, this does not mean I am a health professional or that my advice should be
taken over a health professionals. If I am not able to help, rest assured there will probably be more people to help.
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Neurology Community Resources
RSS Expert Activity
469720_tn?1388149949
Blank
Abdominal Aortic Aneurysm-treatable... Blank
Oct 04 by Lee Kirksey, MDBlank
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
Top Neurology Answerers
620923_tn?1416285879
Blank
selmaS
Allentown, PA
338416_tn?1413581329
Blank
jensequitur
Fort Worth, TX
352007_tn?1372861481
Blank
LisaJF
1780921_tn?1416842066
Blank
flipper336
Chandler, AZ
10389859_tn?1409925468
Blank
Foggy2
Avatar_m_tn
Blank
Ball123