Neurology Community
TEMODOR FOR THREE YEARS
About This Community:

This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

TEMODOR FOR THREE YEARS

Husband Jack had a IV GBM removed three years ago and is thriving after enduring radiation and Temodor for three years.  Question:  Have any others endured two or more years of Temodor?  Jack is 64 and continues to work, although the side-effect has been some nerve damage and pain and discomfort from same for which Jack takes meds which provide some relief.  Thanks for any feedback.  Loyce!
Related Discussions
Avatar_f_tn
I have been treated for stage 4 GBM for two years.  I'm a 45 y.o. female, I was told my chances are not good.  Unlike most, I did not tolerate the temodar well. I had lots of side effects (mostly nausea, fatigue, anxiety, clinical depression)  I also had whole brain radiation.  The tumor did start to grow after I stopped temodar, so now they've put me on IV chemo, Avastin with cpt-11.  Duke University has some very hopeful studies with that.

For help with the temodar side effects, they gave me valium for sleep and anxiety, an antidepressant, and Vicodin for muscle pain.  I tried to work for a bit a year into treatment but felt way too tired and still scared and dizzy (I'm a clinical social worker, and do therapy with individuals and groups.  Now with the IV chemo I pray it works, but I feel even worse side effects. I'd love to hear if other GBM survivors had had Avastin.
thanks,
Tara
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Neurology Community Resources
RSS Expert Activity
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eating Control: How to St...
Aug 28 by Roger Gould, M.D.Blank
Top Neurology Answerers
620923_tn?1405964489
Blank
selmaS
Allentown, PA
338416_tn?1260996698
Blank
jensequitur
Fort Worth, TX
1780921_tn?1384615710
Blank
flipper336
Chandler, AZ
10389859_tn?1409925468
Blank
Foggy2
352007_tn?1372861481
Blank
LisaJF
900662_tn?1380159390
Blank
johnniebear
chicago area, IL