TNA and Severe Headache

[llcoolj]

I am a 30 year old FM recently diagnosed with Trigeminal Neuralgia.  Every time I get an attack it is preceded by the MOST intense bilateral temporal headache and I can't find much about this particular symptom in others.  Tegretol works wonders for the shock-like typical facial pain I experience but does nothing for the headache.  Would a prn migraine medication (is there such a thing?) or other treatment help me with this symptom?  Thank you in advance for any response, Lindsay  

[knightwingfire]

Hi Friend First and Most important Dont hesitate to Contact me. I have TRIGEMINAL NEUROPATHY, Neuropathy is where the nerve is SEVERED of Mechanically damaged Neuralgia is when its A Disease IE Diabetes or brain damage . Your SUPER SIZED Headache is to me a MANDATORY part of the Diagnosis .  WHat is vital is the treatment. Tegratol is a great choice. Its cheap     and works on BOTH issues to a point .

NOW dont Use A Mrs. Hones said this or that doesn't work and I cut my heads off to cure it that works great. Go by your doctors advice . However on this case its a LOT of Research     by both of you . Neuralgia issues are not as well understood as We need them to be.
TGN causes the headache and its ALWAYS there just not as Controlled as the TN. try asking to TITRATE UP on the Tegratol until that disappears UP to 1200Mg per day. So you must wait until the headache pops up kill it with tegratol and that MAY be your new NORM once its Gone Drop top a mid point.
OR as tegratol has bad       drug interactions and Serious ones such as you wake up and find your DEAD ( theophylline is deadly) Go to Gabapentin its a great drug for TN and other Seizure control .  This will easily do both with no bad side effects or Drug interactions. ITS nearly A pure medication and effective you can Go to 3600 MG per day normal max I tried 48000       one trial My Dr. authorized For my TN it was NO remedy. Once its out of its box its PURE Hell NO help. known . Just scream and Prey. I returned to 3600 Once its       under control again its stays there for the next attack Which is a long wait. However I only have to drop to 3200mgs /day and Its the Devil   itself  for 4 to 10 days . I have Shattered C1 to C7 and T1      T 10 to S1 also not much left of my spine I also use the Gabapentin as my front line COPNTROL not KILL the OPIATE kill as the ain Or Wounds it I dont think of it until the TN tortures me the headache and the Full onset of PERIPHERAL Neuropathy that  TEGRATOL and Dilantin are known to cause ,( be mindful of that ) I had chemo therapy last year and that Was my    source of CIPN Chemically induced Peripheral Neuropathy. Now we have the 4 ropes of the HELL's torture ring. I am trapped.  
Ive had the TBN since 1968 and next month marks the 50th anniversary, of this struggle. NO cure or easy way out.  NO CURE. Ive tried the unthinkable Do Not try any Surgery Radio Cullpathy of the brain to sever the nerve makes the  headache Absolutely Uncontrollable. I've had the ROOT severed and removed from the Entry to the *** to the Mandible joint  and back      thru the Cheek to the mid point of the Jaw. DONT even dream of that the pain is beyond all the Devils imagination.  SO learn to live with it. I truly       know what that sounds like     60 + years of screaming hell.  YES SCREAMING HELL. NO less no pain comes close to what I have undergone for the past 25 years because a Dr. was Knife  happy. He died shortly after that in 1993.Ive learned to survive with this . Direct nerve pain has no ITS LIKE THIS description . Thus its Medications as  little negative damage to the nerves and body as Possible. None better than Gabapentin. and it tolerates most other Drug combinations. your very young and you have lots of years to live with The pain that make's surviving the fall from a 10 story building seam trivial. Sorry for my long winded answer that's because you dont deserve    this PRISON Sentence. you have what doctors consider the number ONE PAIN. No one can relate too. Except people like myself . Been there hate the thought of going back. But its inevitable.  Ive woken the   entire 3 floors of my apartment building screaming in agony. Gabapentin + 2 T3 or ENTEC 30 will squash the pain,   PER DAY but the Codeine     is a MANDATORY drug that works as the pain suppressant  and the Gabapentin can Control the Pain Chemistry that is Flooding the Brain. I do mean Flooding. Gabapentin works by controlling Pain  Chemistry flow. Nerve damage causes the Flow to mimic a river in maximum flood condition. The class of drugs are typically known as ANTI CONVUILLSANTS     They all have a FINITE limit of Chemical activity then  stop working . Gaba. is just longer active . Its      more costly, AKA 87 cents per 400 mg pill vs 12 cents for   a 200 Mg. teagratol Compare 100 Mg of tegratol to 400mg-0 Gabapentin so this gives you a 1200 mg of Gaba to continue not much but enough . You can copy this and discuss it with your doctor and get his opinion But once more HO home made remedy its a Joint research with your doctor.
I wish you well and good luck, remember I  have 50 years as of November 1o 19686, experience to validify my best advice.  

Peter

hint As outlookl.com, to my screen name to email me direct.          

[llcoolj]

I have been under the care of a neurologist for awhile, but as you know - the longer you have this disorder the more you begin to notice patterns.  I've been noting these headaches over the past 6 or so attacks.  I really need a prn prescription -as I have been making regular visits to the urgent care for relief and I can only get there with someone else driving.  The pain is that intense.  Well, knock wood- I only have an attack 1 or 2 times a month.  I'm considering myself lucky and trying not to dwell on the negative.  I am going to contact my neurologist BEFORE I experience my next attack.  Thank you, Lindsay.

[Caliber2005]

Hi,
How are you feeling now?
The Pain which is severe in nature, stabbing type, lasting for few seconds to minute and which has a triggering factor to it describes pain of trigeminal neuralgia. Physical examination of the patient is normal.
Comprehensive pain management care is helpful.
Carbamazepine is drug of choice, but along with Baclofen it serves good result for episodic pain. There are other newer anti-convulsants like toprimate which could be tried, but it depends on neurologist comfort with the drug.
You can be started on opoid analgesics if headaches are severe.
I think you need to discuss and consult with neurologist regarding starting treatment for headache.
Hope this helps.
Bye.