When I was 13 years old, I had surgery for tethered cord syndrome (TCS). When I was 20, I started having a lot of ankle weakness and back pain, so I started physical therapy and it seemed to help. They told me in physical therapy that my back muscles were in a slight spasm. I wasn't able to complete physical therapy, but I didn't experience much pain anymore, until about 6 months ago (I am now 23, it has been barely over 10 years since I've had the surgery for TCS). I've been experiencing a lot of pain in my back and particularly my neck, so bad that often times I can't sleep or I get terrible headaches, and in the last week it has been feeling like my neck is too weak to even hold up my head. I am not experiencing any bladder or bowel problems, which are often a symptom of TCS, and my legs and ankles have also been fine, but I had heard that cords could get "retethered" after surgery and I was wondering how likely that was. Do my symptoms sound like my cord could have been retethered? Is this something that could be helped by going back to physical therapy, or should see some kind of specialist? And what kind of specialist would I need see? Any help or information you can give me is a appreciated. Thanks.
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