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The hell is wrong with me?

Hi there, very new to this,  but I thought there can't be much harm in asking.
Ok,
So over the past 7-8 weeks, I have had 3 grand mal seizures, 2 at home (hospitalised after both) and one while in hospital the second time. And over 30 complex partial seizures - some day after day, some 3. A day, at random intervals.
Be that sleeping,  walking,  sitting, talking.
My last grand mal seizure I was asleep in bed and woke up to my partner crying coz she was so scared (understandably)
Now there hasn't been anything specific setting these off as they appear to come out of no where.
I'm not a very big alcohol drinker, maybe a 6 pack a month if that.
I do smoke pot on occasion,  but that wouldn't be the issue as I've been smoking for a couple years now and this has only been recent. And I really don't smoke that much.
My family is prone to genetic cardio myopathy,  I haven't been tested yet but I thought I would mention it.
After my last seizures I've been having trouble finding words and walking. Which is probably the result of having these seizures in the first place.
And presently there are no other symptoms.
I have had an EKG,  EEG, MRI and a consultation with 2 separate neurologists while in hospital, all tests have come back clean. Even had a chest X-ray which was clean.

So everybody has no idea what the hell is happening to me, and it took 7 weeks to find out that these drooling episodes if been having were actually complex partial seizures.

The hospital has prescribed  epilin - an anti epileptic as well as some anti neusia and sleeping tablets.

Any information would defiantly be appreciated,  and heck even a doctor recommendation on who to see in regards to something like this would be great.
Regards,

R.
3 Responses
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10389859 tn?1409921868
The above post is true.  But continue to see another doctor as I suggested, and have them look into things that we have posted above.  Having your blood tested can most likely be done by your PCP/Primary, so you can do this while waiting to get into another Neurologist.
Helpful - 0
1756321 tn?1547095325
I had full body seizures from magnesium deficiency. I found this info from Healthline - Generalized Tonic-Clonic Seizures..

"The onset of generalized tonic-clonic seizures could be caused by a variety of health conditions. Some of the more severe conditions include a brain tumor or a ruptured blood vessel in your brain (known as a stroke). A head injury could also trigger your brain to induce a seizure. Other potential triggers for a grand mal seizure could include:

* low levels of sodium, calcium, glucose, or magnesium in your body
* drug or alcohol abuse or withdrawal
* having certain genetic conditions or neurological disorders

Sometimes doctors may not be able to determine what triggered the onset of your seizures."
Helpful - 0
10389859 tn?1409921868
I'm very sorry to hear of your problems.  Although the drinking and marijuana use you don't think are a problem, both affect your brain, and this can't be helping your situation any, so I would recommend that you stop both. If you need help with this, you should attend an AA and NA meetings, which are found in most local communities.

Eplim (Valproic acid) is a common drug used for your problems.  Were you ever put on Topamax with  Eplim?  If so, this can cause the problems with finding words as well.  You can try taking Eplim with food to decrease the nausea to see if that helps.  Has the doctor ordered regular lab tests while taking this medication?

If your current Neurologist can't find any answers after the tests you have been through, I suggest you get a 2nd opinion.  Keep us informed.
Helpful - 0
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