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Neurology (Expert Forum)
The size and location and probably type
This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Fibromyalgia, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury.
The size and location and probably type
by eloridas, Feb 16, 2003 12:00AM
You answered a few questions for me the other day, but needed further info too make if more clear due too not physically seeing the MRI. The location is right pontine cistern/upper margin cerebellum pontine angle. First MRI, May 2002 showed it too be 1.4 CM & was wrapped around the 5th cranial, pushes on the 8th & indented the sac around the spinal cord (not yet cut off flow of fluid), assumed too be a menigioma, though the report suggested it several different types of tumors & could be grade two. Had gamma knife in Nov 2002, which that MRI showed growth. The latest MRI, late Jan 2003 showed 2CM, the diff of schwannoma or atypical menigioma, but leaning more too the atypical menigioma. Have a new neurologist who ordered this last MRI. Hoping too hear from him on Monday about further treatment/care, but have been told very little. After all these months would like too know what too expect. Main problems I have experienced so far are the constant ringing of my ears after I had gamma knife & probably seizures that I had been told were not from the tumor itself--BUT lately been told that they can be from swelling (though I have had these episodes for at least two years now). Also I had a bleed that was never look into in March of 2001--it filled the roof of the right side of my mouth. Afterwards I had become ill & had problems with bodily functions (bladder/bowel), concentrating & lifting my left leg & arm (alot of pain also), it was assumed too be a compression & had surgery on my C5/6 April 2001, which only seem too make the pain worse. Thanks again for your help!
Doctor's Answer
by CCF-Neuro-M.D.-JT, Feb 19, 2003 12:00AM
I reviewed our prior communication and thank you for the additional information. However, it's very difficult to sort out your all of your complex problems without seeing you personally. What I can say is that it sounds like the ringing in the ears and vertigo are probably due to the effects of the tumor or prior surgery there. The arm/leg weakness on the other hand may be related to the C5-6 problem but depending on how extensive that tumor is around or against the pons, could be due to that also. Very hard to say and I certainly don't want to misinform you. Hope your new neurologist is helpful. You could always try seeing Dr. Glen Stevens, our neuro-oncologist here at the clinic for another opinion. Good luck.
