Aa
A
A
Close
Avatar_universal
Tolosa Hunt Syndrome
12 month history of THS, very slow recovery on steroids. Any other successful treatments tried by other people with THS? Connie
Cancel
4 Answers
Page 1 of 1
Avatar_universal
Hi.  For THS cases which are not responsive to steroids, some chemotherapeutic and immunosuppressive agents like azathioprine and methotrexate may help.  Radiation therapy has also been tried with some success.
Comment
Cancel
Avatar_universal
Comment
Comment
Submit Comment
Avatar_universal
Hi. Thanks for response. Will discuss these options with Neuro.but hope it doesn't get to that.In the meantime will keep looking for other people with THS for support/advice.
Comment
Cancel
Avatar_universal
Comment
Comment
Submit Comment
Avatar_universal
Span/ Connie...................... Since your post is from a while ago, just wondering if you are still on steroids? Did you ever try chemotherapeutic or immunosuppressive agents? My husband is the one dx with THS and he has been on predonisone for about 1 year now. (40mg daily). He can even reduce the strength by 5mg without having pain. I told his Dr about the other treatment possibility and she sed she would rather get him off prednisone and manage his pain in other ways.

Dr Roque ...... do you know of any physicians in the states that knows about THS? Aside from one neurologist who mentioned THS in passing at my husband's consultation, no other physician we have been in contact with had ever heard of THS. Even his current neurologist, that he was referred to because she is a headache specialist, had never heard of THS and had to research the condition before his next appointment.
Comment
Cancel
Avatar_universal
Comment
Comment
Submit Comment
Avatar_universal
I have THS, got it in May 2009. Was on steroids for 3 months, and I am very happy to be off the steroids. My eye is still shut and paralyzed and I am praying it gets better soon.  I do still have headaches and I have had 2 steroid shots in the eye with THS.
Comment
Cancel
Avatar_universal
Comment
Comment
Submit Comment
Your Answer
Avatar_universal
Answer
Know how to answer? Tap here to leave your answer...
Answer
Tolosa Hunt Syndrome
Submit Answer
A
A
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Neurology Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488_tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543_tn?1443740527
Blank
TMJ/TMJ The Connection Between Teet...
01/15 by Hamidreza Nassery , DMD, FICOI, FAGD, FICCMOBlank
Top Neurology Answerers
620923_tn?1452919248
Blank
Allentown, PA
338416_tn?1420049302
Blank
Fort Worth, TX
144586_tn?1284669764
Blank
Avatar_universal
Blank
562511_tn?1285907760
Blank
CA
209987_tn?1451939065
Blank
AB