Neurology Community
Tolosa Hunt Syndrome
About This Community:

This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Tolosa Hunt Syndrome

12 month history of THS, very slow recovery on steroids. Any other successful treatments tried by other people with THS? Connie
Related Discussions
4 Comments Post a Comment
Blank
Avatar_dr_m_tn
Hi.  For THS cases which are not responsive to steroids, some chemotherapeutic and immunosuppressive agents like azathioprine and methotrexate may help.  Radiation therapy has also been tried with some success.
Blank
Avatar_n_tn
Hi. Thanks for response. Will discuss these options with Neuro.but hope it doesn't get to that.In the meantime will keep looking for other people with THS for support/advice.
Blank
Avatar_f_tn
Span/ Connie...................... Since your post is from a while ago, just wondering if you are still on steroids? Did you ever try chemotherapeutic or immunosuppressive agents? My husband is the one dx with THS and he has been on predonisone for about 1 year now. (40mg daily). He can even reduce the strength by 5mg without having pain. I told his Dr about the other treatment possibility and she sed she would rather get him off prednisone and manage his pain in other ways.

Dr Roque ...... do you know of any physicians in the states that knows about THS? Aside from one neurologist who mentioned THS in passing at my husband's consultation, no other physician we have been in contact with had ever heard of THS. Even his current neurologist, that he was referred to because she is a headache specialist, had never heard of THS and had to research the condition before his next appointment.
Blank
Avatar_n_tn
I have THS, got it in May 2009. Was on steroids for 3 months, and I am very happy to be off the steroids. My eye is still shut and paralyzed and I am praying it gets better soon.  I do still have headaches and I have had 2 steroid shots in the eye with THS.
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Neurology Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
New Cannabis Article from NORTH Mag...
Jul 20 by John C Hagan III, MD, FACS, FAAOBlank
242532_tn?1269553979
Blank
3 Reasons Why You are Still Binge E...
Jul 14 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eating: What Your Closet ...
Jul 09 by Roger Gould, M.D.Blank
Top Neurology Answerers
620923_tn?1405964489
Blank
selmaS
Allentown, PA
144586_tn?1284669764
Blank
caregiver222
Avatar_m_tn
Blank
Ball123
1689801_tn?1333986916
Blank
Dagun
Iceland
352007_tn?1372861481
Blank
LisaJF
1780921_tn?1384615710
Blank
flipper336
Chandler, AZ