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Types of Seizures
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Types of Seizures

For years, I
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Avatar_n_tn
First of all, keep in mind that I am unable to diagnose you because I am unable to examine you, this forum is for educational purposes.
   The symptoms that you describe (visual changes, Jamais-Vu and transient epileptic amnesia) can be seen in temporal lobe seizures or could be unrelated.  You have mentioned a normal MRI and EEG years ago, but these do not rule out seizures.  To get a better idea of the nature of the spells, would require catching one of these episodes while having the EEG.  If this is not possible then getting a 2 hour sleep deprived EEG can also be helpful.  Low sodium with trileptal is a common side effect.  Joint/muscle pain with tegretol is a rare side effect and I would recommend a workup to identify other possible causes other that the tegretol.  If you stop the tegretol you should follow a drug level of lamictal to make sure you are therapeutic (have enough in your blood).  If concern for seizures arise after the tegretol is removed then your doctors may consider depakote, which works for seizures and bipolar disorder (however depakote has many side effects as well including increasing the drug levels of lamictal, so this should be done cautiously with professional help).
I hope this has been helpful.
4 Comments
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144586_tn?1284669764
The basic problem is to make sure you don't injure yourself or others by a lack of situational awareness during these periods. You have a host of symptoms that should have been reported to the FDA. They have a form on their website. Get a bound book and keep a dily log of your episodes, keeping precise notes on what you are on. You need to find a physician who is really interested in you.
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Avatar_m_tn
I was on Tegretol over 20 years ago to control petit mal seizures and now I'm on Lamictal and Topomax (topamax) and they are controlling the problem very well.  The key thing is to be very careful withdrawing from these meds.  Depending how long you have been on a medication, my experience are that it can take up to six months to get the withdrawl (withdrawal) symptoms out of the system.  By the way, although I don't have Bipolar diorder, you might want to consider Topomax (topamax) with the Lamictal.  Both drugs are approved for bipolar and seizure disorder.
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Avatar_n_tn
Actually Topomax (topamax) is what my doctor has suggested I try next. I'm supposed to wait another week until I start it though. I passed out while shopping a couple of weeks ago and one of the bystanders told the paramedics that I had a seizure after I passed out and they wrote in their report that I had a mild seizure. All of my doctors have said that it wasn't a seizure but rather just some twitching which is common when you pass out. Because it was documented as a seizure my doctor thinks that we should document that I don
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