I'm sorry to use this forum to settle a debate as I'm sure your time could be better spent. However,here goes I have an ongoing unidentified condition that started about three years ago. My Dr
firstFirst progesterone mc10
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First-progesterone vgs 100
First-progesterone vgs 200
First-progesterone vgs 25
First-progesterone vgs 400
First-progesterone vgs 50
First-testosterone
First-testosterone mc thought it might be ALS but various test didn't
supportSupport
Support 500 that. Over that space of time to present my problems have progressed, increased cramping ,twitching ,jerking, fasiculations,
tremorEssential tremor
Familial tremor
Hand tremor
Tremor and I do loose my balance much more often and easier then in the past however the only substantial
weaknessWeakness I've noticed is when Itry to get get up from sitting and I do fatigue pretty easy. My belief is ALS would have progressed much farther and much faster the what I have experianced. My wife believes there are various forms of ALS and some progress slowly. The question are there differant types of ALS and if so how long might they last.
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There is in fact a
spectrumSpectrum-4 of disability in ALs with some types
particularly some
familialFamilial tremor,variants progressing very slowly, one famous
patient the British scientist Stephen Hawking has had the
diagnosis for over twenty years.
In general to be given the label certain criteria must be met and
I am not clear from your posting that you have ever even been given the diagnosis
with any degree of confidence in the first pace.
Some of your symptoms sound like ALs but tremors , jerking ans unsteadiness
which is independrent of weakness do not sound in any way typical.
You may well have an unidentified condition in which case the prognosis
cannot be predicted, but if the condition is not identified there is little
benefit in giving it the worst possible label.
The fact that you do not fit the diagnostic criteria for ALS and are
progressing at an unusual rate would suggest that this is not the
diagnosis in the first place.