Nutrition Health Chat: Tuesday, Dec. 8th, 5-6 PM Eastern. Learn how vitamins, minerals, and phytonutrients affect your health. Free live Q&A. Join us!
Member Comments are provided by individuals and reflect their personal opinions only. Under NO circumstances should you act on any advice or opinion posted in this forum. ALWAYS check with your personal physician before taking any action regarding your health! MedHelp International and our partners, sponsors and affiliates have no obligation to monitor any comments posted on this site, or the content and/or accuracy of such exchanges. MedHelp International does not endorse the views of any user.
Neurology (Expert Forum)
Vasculitis/Fibromyalgia
This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Fibromyalgia, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury.
Vasculitis/Fibromyalgia
by Laura-R-Seidman, Jan 01, 1995 12:00AM
Posted By Laura R. Seidman on February 22, 1998 at 18:24:01:
I was diagnosed with vasculitis and fibromyalgia about a year and a half ago after bad joint pain, a positive ANA and then waking up with no feeling on my left side (Dr. initially thought it was a stroke and/or lupus). I have been through every battery of tests you can think of. Currently on Prednisone and Imuran, and seems that I can't go below 50 mg. Imuran without adverse reaction. At one point I was on 60 mg. of Prednisone and 100 mg. of Imuran. Continue to have pain/numbness on left side - including face, fatigue, difficulty concentrating, extreme joint pain, Raynaud's, extreme sensitivity to cold (can't stand to have my arms/legs exposed in any weather), inability to sleep and blurred vision. Most recent was a rash around the eyes and on my neck. I've seen a rheumatologist (my main doctor), the head of the neurology department at U. of Miami-Jackson Memorial, a dermatologist, an opthalmologist and another neurologist. I am newly married and was advised one month after my marriage by my OB/GYN that I should not have children because of the high risk. I am a 32-year-old female attorney who really cannot afford to be out of work with this illness. It's all I can do to drag myself through the end of the work week - I have to lie in bed almost all weekend to recover (I'm lucky to have a supportive husband). I already missed two months last year. Any suggestions?
I was diagnosed with vasculitis and fibromyalgia about a year and a half ago after bad joint pain, a positive ANA and then waking up with no feeling on my left side (Dr. initially thought it was a stroke and/or lupus). I have been through every battery of tests you can think of. Currently on Prednisone and Imuran, and seems that I can't go below 50 mg. Imuran without adverse reaction. At one point I was on 60 mg. of Prednisone and 100 mg. of Imuran. Continue to have pain/numbness on left side - including face, fatigue, difficulty concentrating, extreme joint pain, Raynaud's, extreme sensitivity to cold (can't stand to have my arms/legs exposed in any weather), inability to sleep and blurred vision. Most recent was a rash around the eyes and on my neck. I've seen a rheumatologist (my main doctor), the head of the neurology department at U. of Miami-Jackson Memorial, a dermatologist, an opthalmologist and another neurologist. I am newly married and was advised one month after my marriage by my OB/GYN that I should not have children because of the high risk. I am a 32-year-old female attorney who really cannot afford to be out of work with this illness. It's all I can do to drag myself through the end of the work week - I have to lie in bed almost all weekend to recover (I'm lucky to have a supportive husband). I already missed two months last year. Any suggestions?
Member Comments
by marevico, Oct 15, 2009 10:12AM
A related discussion, inmune system abnormalities was started.
