Neurology Community
Very worried about new diagnosis for my son
About This Community:

This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Very worried about new diagnosis for my son

My son just turned 11 yrs old the past few days and has been diagnosed with growth hormone defiency in December 2009 after gettting an MRI there showed no mass/tumor present.  He has been on a growth hormone injection daily with only 25% results, the doctor did another MRI this past Friday & found a Pituitary Microadenoma and we have an appt with a neurosurgeon this coming Thursday.  

Has anyone with a child been through this type of situation?  Right now we are told it is small & benign but as a parent I can't stop crying. He has been through so much with all this happening. Now we know the reason for his pituitary dwarfism.

Please share your comments with me. I'm very upset.

Thank you!
Related Discussions
657231_tn?1390151580
I had two pituitary tumors. I can understand. I had Cushing's and a prolactinoma. I am currently panhypopituitary, and that includes growth hormone deficiency. So I take the injections nightly as well.

It is possible that the lesion was there before but was missed - one of mine hid for 12 years. It can fall between the slices, or if the MRI is not dynamic, then it may not show up as well.

Odds are, unless the tumor is large, they may just monitor for this type of tumor as it is causing only a low hormone (whereas mine were causing high hormones). He will also need eye checks.

I can put you in touch with an organization where there are bunches of children with the same issue, and  you can even meet some of them in person. Hang in there.
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Neurology Community Resources
RSS Expert Activity
469720_tn?1388149949
Blank
Abdominal Aortic Aneurysm-treatable... Blank
Oct 04 by Lee Kirksey, MDBlank
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
Top Neurology Answerers
338416_tn?1413581329
Blank
jensequitur
Fort Worth, TX
620923_tn?1416285879
Blank
selmaS
Allentown, PA
1780921_tn?1416842066
Blank
flipper336
Chandler, AZ
Avatar_m_tn
Blank
Ball123
10389859_tn?1409925468
Blank
Foggy2
900662_tn?1380159390
Blank
johnniebear
chicago area, IL